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Global mapping of publicly available datasets: understanding the barriers to visibility, accessibility and utility

Safe People

Organisation name

University Hospitals Birmingham NHS Foundation Trust

Organisation sector

CQC Registered Health or/and Social Care provider

Applicant name(s)

Alastair DennistonXiao LiuNeil Sebire

Funders/ Sponsors

Insight HDR HubLancet Commission on Global Eye Health

Safe Projects

Project ID

8124060000000000

Lay summary

This project looks at the publicly available eye imaging datasets that are informing new health technologies and approaches to care, and how they represent diverse people and needs. Eye health is one of the leading areas of digital innovation. Through global searches and analysis, this project is mapping what publicly available eye imaging datasets are out there and reviewing the extent to which they represent the diversity and the needs of the world population. In understanding and assessing the information being used by AI algorithms, the team can identify gaps – such as a lack of basic, clinically important information about the people represented (like age, sex and ethnicity) or disparities in who or what conditions are represented. We can then work to understand why this is the case – and look for possible solutions. For example, if data isn’t publicly available, why? Are there barriers to collecting it, and how can we overcome these barriers? Or are there particular challenges in making more representative data visible, accessible and useable?

Public benefit statement

The project has already uncovered major gaps in the publicly available data on eye health and highlights a concerning lack of data on certain conditions, from certain parts of the world and certain population groups. The ambition is to extend these reviews into other health disciplines to understand the scale of the problem and to make sure that new AI health technologies are based on representative datasets so that everyone benefits from AI innovations and decision-making for better health and care.

Latest approval date

18/01/2022

Safe Data

Dataset(s) name

INSIGHT Datasets