Dataset - Health Data Research Gateway

Dataset

Publications using this dataset (external search)

Summary

The dataset contains anonymised patient and public conversation which has taken place online regarding 17 cardiovascular disease areas (including: arrhythmia & tachycardia, cardiopulmonary disease and heart failure) in the UK. The dataset is segmented by cardiovascular conditions and topics conversed about such as testing, imaging and emotional impact.

Documentation

The dataset contains anonymised patient and public conversation which has taken place online regarding 17 cardiovascular disease areas (including: arrhythmia & tachycardia, cardiopulmonary disease and heart failure) in the UK. The dataset is segmented by cardiovascular conditions and topics conversed about such as testing, imaging and emotional impact.

Dataset type

Health and disease, Socioeconomic, Lifestyle, Imaging types, Information and communication, Measurements/Tests, Treatments/Interventions

Dataset sub-type

Cardiovascular

Dataset population size

64613

Associated media

on request

Keywords

Observations

Observed Node	Disambiguating Description	Measured Value	Measured Property	Observation Date
Persons	Persons in this dataset are determined by the unique volume of chosen display names in the data. This is calculated per source (reddit, reviews, other forums), and then totaled together. In other forums and reviews domains persons may choose to denote themselves as anonymous. In this case, anonymous users are counted once per domain. For example, on 'healthunlocked.com/vasculitis-uk'.	64613	Unique online names indicating number of persons	01 Feb 2025

Provenance

Purpose of dataset collection

Research cohort

Source of data extraction

Free text NLP

Collection source setting

Other

Image contrast

Not stated

Biological sample availability

None/not available

Structural Metadata

Details

Publishing frequency

Irregular

Version

1.0.0

Modified

13/02/2025

Citation Requirements

White Swan is a registered charity in England and Wales (1176486) improving health and wellbeing through AI technology and analytics.

Coverage

Start date

01/02/2023

Time lag

1-2 months

Geographic coverage

United Kingdom

Maximum age range

112

Accessibility

Language

en

Alignment with standardised data models

OTHER, LOCAL

Controlled vocabulary

LOCAL, HPO, OTHER

Format

csv, xlsx, web page explorer

Data Access Request

Dataset pipeline status

Available

Access rights

In Progress

Time to dataset access

1-2 months

Access request cost

On Request

Access method category

Varies based on project

Access service description

On Request

Jurisdiction

UK

Data use limitation

Project-specific restrictions

Data use requirements

Project-specific restrictions

Data Controller

White Swan

Data Processor