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Trusted Research Environment for CVD-COVID-UK (Scotland)

Population Size

5,500,000

People

Population Size statistic card

Years

1997

Years statistic card

Associated BioSamples

None/not available

Associated BioSamples statistic card

Geographic coverage

Scotland

Geographic coverage statistic card

Lead time

1-2 months

Lead time statistic card

Summary

Linked routinely collected health datasets across the whole population of Scotland within a secure TRE provided by the National Safe Haven (https://publichealthscotland.scot/resources-and-tools/health-intelligence-and-data-management/electronic-data-research-and-innovation-service-edris/national-safe-haven-nsh/). These datasets are accessible to approved researchers who are members of the BHF Data Science Centre's CVD-COVID-UK consortium.

Documentation

CVD-COVID-UK, co-ordinated by the British Heart Foundation (BHF) Data Science Centre (https://bhfdatasciencecentre.org/), is one of the NIHR-BHF Cardiovascular Partnership’s National Flagship Projects.

CVD-COVID-UK aims to understand the relationship between COVID-19 and cardiovascular diseases through analyses of de-identified, pseudonymised, linked, nationally collated health datasets across the four nations of the UK. The consortium has over 400 members across more than 50 institutions including data custodians, data scientists and clinicians, all of whom have signed up to an agreed set of principles with an inclusive, open and transparent ethos.

Approved researchers access data within secure trusted/secure research environments (TREs/SDEs) provided by NHS England (England), the National Safe Haven (Scotland), the SAIL Databank (Wales) and the Honest Broker Service (Northern Ireland). A dashboard of datasets available in each nation’s TRE can be found here: https://bhfdatasciencecentre.org/areas/cvd-covid-uk-covid-impact/

This dataset represents the linked datasets for CVD-COVID-UK in the National Safe Haven for Scotland and contains the following datasets: • Outpatient Appointments and Attendances - Scottish Morbidity Record (SMR00) • General Acute Inpatient and Day Case - Scottish Morbidity Record (SMR01) • Scotland Accident and Emergency • COVID-19 Tests (lab/lighthouse testing) • SARS-CoV-2 viral sequencing data (COG-UK data) - Lineage/Variant Data - Scotland • Scottish Covid-19 Vaccination Data • National Records of Scotland (NRS) - Deaths Data • SICSAG Daily (Scottish Intensive Care Audit Group) • SICSAG Episodes (Scottish Intensive Care Audit Group) • Prescribing Information System (PIS) • Scottish Stroke Care Audit • Diabetes covariates • Scottish Renal Registry

Dataset type

Health and disease, Registry, Treatments/Interventions, Measurements/Tests, Socioeconomic, Lifestyle, Environment and energy

Dataset sub-type

Cardiovascular, Births and deaths, Therapeutic, Ethnicity, National disease registries and audits, Deprivation, Others, Vaccines, Maternity and neonatology

Dataset population size

5500000

Keywords

Observations

Observed Node

Disambiguating Description

Measured Value

Measured Property

Observation Date

Persons

Some datasets cover the estimated size of the population, although distinct counts over time may be in excess of this due to population turnover, population movement and in a very small proportion there may be duplication. https://bhfdsc.github.io/documentation/docs/dataset_overview/dataset_summary_table.

5500000

Distinct Count of IDs

18 Jul 2023

Provenance

Purpose of dataset collection

Care, Audit, Disease registry

Collection source setting

Secondary care - Accident and Emergency, Secondary care - Outpatients, Secondary care - In-patients, Community, Prescribing - Community pharmacy, Secondary care - ICU, Prescribing - Hospital

Patient pathway description

Linked care record across secondary and tertiary care

Image contrast

Not stated

Biological sample availability

None/not available

Details

Publishing frequency

Quarterly

Version

7.0.0

Modified

08/10/2024

Coverage

Start date

01/01/1997

Time lag

Variable

Geographic coverage

Scotland

Maximum age range

150

Follow-up

Other

Accessibility

Language

en

Alignment with standardised data models

NHS SCOTLAND DATA DICTIONARY

Controlled vocabulary

OPCS4, READ, OTHER, NHS SCOTLAND NATIONAL CODES, ICD10

Format

SQL database table

Data Access Request

Dataset pipeline status

Not available

Time to dataset access

1-2 months

Access method category

TRE/SDE

Access service description

Data is accessed within the Scottish National Safe Haven under the arrangements in place with the BHF Data Science Centre for CVD-COVID-UK

Jurisdiction

GB

Data use limitation

Research-specific restrictions

Data use requirements

Collaboration required,Institution-specific restrictions,Project-specific restrictions,Publication required,Time limit on use,User-specific restriction

Data Controller

Public Health Scotland/National Records Scotland

Data Processor

Public Health Scotland

Dataset Types: Health and disease, Registry, Treatments/Interventions, Measurements/Tests, Socioeconomic, Lifestyle, Environment and energy

Dataset Sub-types: Cardiovascular, Births and deaths, Therapeutic, Ethnicity, National disease registries and audits, Deprivation, Others, Vaccines, Maternity and neonatology


Collection Sources: Secondary care - Accident and Emergency, Secondary care - Outpatients, Secondary care - In-patients, Community, Prescribing - Community pharmacy, Secondary care - ICU, Prescribing - Hospital

Relationships: