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The PIND Study research database.

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Eastern England Secure Data Environment (SDE)

Population Size

2,373

People

Population Size statistic card

Years

1997 - 2024

Years statistic card

Associated BioSamples

None/not available

Associated BioSamples statistic card

Geographic coverage

United Kingdom

Geographic coverage statistic card

Lead time

1-2 months

Lead time statistic card

Summary

Documentation

Dataset type

Health and disease

Dataset population size

Associated media

Keywords

Observations

Observed Node

Disambiguating Description

Measured Value

Measured Property

Observation Date

Persons

Number of patients included in the study

2373

count

29 Apr 2024

Provenance

Purpose of dataset collection

Source of data extraction

Collection source setting

Image contrast

Biological sample availability

Details

Publishing frequency

Version

Modified

05/09/2025

Distribution release date

31/08/2025

Coverage

Start date

30/04/1997

End date

29/04/2024

Time lag

Geographic coverage

Maximum age range

Follow-up

Accessibility

Language

Alignment with standardised data models

Controlled vocabulary

Format

Data Access Request

Dataset pipeline status

Time to dataset access

Access method category

Jurisdiction

Data use limitation

Data use requirements

Data Controller

Data Processor

Dataset Types: Health and disease

Dataset Sub-types: Neurological,Rare diseases


Data Custodian: Eastern England Secure Data Environment (SDE)

Collection Sources: Cohort, study, trial

Publications about this dataset

Epidemiology of progressive intellectual and neurological deterioration in UK children.Verity CM, Maunder PJ, Winstone AM, Pal S.

Developmental medicine and child neurology

Published - 2025