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BREATHE: Bristol Airways Cohort

Population Size

0

People

Population Size statistic card

Years

2023

Years statistic card

Associated BioSamples

None/not available

Associated BioSamples statistic card

Geographic coverage

United Kingdom

England

Geographic coverage statistic card

Lead time

Data only
Lead time statistic card

Summary

The clinical and biological characteristics of patients with suspected or known airways disease, described using standard care clinical data.

DOI for dataset

https://doi.org/10.1186/ISRCTN83450779

Documentation

BREATHE is a single-centre, prospective longitudinal cohort study of patients who are referred to the Complex Airways Clinic at North Bristol NHS Trust (NBT). It is a platform which will include different sub-studies when they are developed in the future (with amendments reviewed by the sponsor and HRA at the time). BREATHE will record routinely collected clinical data at each stage of the multidisciplinary assessment, diagnosis and management of each patient from initial assessment until they are discharged by the service, or the study ends. The study will not include any additional investigations, questionnaires or patient visits which would not have been included as part of each patient’s routine clinical management. The landscape of airway disease management will change over the next 5 years. As such BREATHE will incorporate an adaptive study design. As novel diagnostics and therapeutics emerge, it is anticipated that changes will be made to standard care which would necessitate changes to the data that is collected. If substantial changes are made, they will be assessed for inclusion in the study and request further ethical approval if necessary. The BREATHE cohort is to be a source of potential subjects for future studies.

Dataset type

Health and disease

Provenance

Purpose of dataset collection

Research cohort

Source of data extraction

Other

Collection source setting

Cohort, study, trial, Secondary care - Outpatients

Biological sample availability

None/not available

Details

Publishing frequency

Irregular

Version

1.0.0

Modified

30/04/2026

Coverage

Start date

15/11/2023

Time lag

Less than 1 week

Geographic coverage

United Kingdom, England

Minimum age range

16

Maximum age range

150

Follow-up

1 - 10 Years

Accessibility

Language

en

Alignment with standardised data models

OTHER

Controlled vocabulary

OTHER

Data Access Request

Dataset pipeline status

Not available

Data Controller

NIHR Bristol Biomedical Research Centre

Data Processor

NIHR Bristol Biomedical Research Centre

Demographics

Dataset Types: Health and disease

Collection Sources: Cohort, study, trial, Secondary care - Outpatients