HDR UK Gateway
HDR Gateway logo

Bookmarks

Vitiligo Registry and Bio-Resource (VOICE)

Population Size

585

People

Population Size statistic card

Years

2020

Years statistic card

Associated BioSamples

None/not available

Associated BioSamples statistic card

Geographic coverage

United Kingdom

Geographic coverage statistic card

Lead time

Variable

Lead time statistic card

Summary

The Vitiligo Registry and Bio-Resource (VOICE) is a prospectively-collected dataset of people with vitiligo attending the UK's largest referral centre for vitiligo.

Documentation

VOICE is a high-fidelity dataset from a specialist vitiligo clinic in a tertiary care setting. Data colection began in June 2020 and is ongoing, capturing sociodemographic and deep phenotyping information, including comorbidities, treatment, biomarkers disease impact and Vitiligo Extent Score (VES).

Dataset type

Health and disease, Registry

Dataset population size

585

Keywords

Observations

Observed Node

Disambiguating Description

Measured Value

Measured Property

Observation Date

Persons

Number of people with vitiligo contributing data to the registry

585

Count

09 Apr 2026

Events

Clinical assessment records

1371

Count

09 Apr 2026

Findings

Median age of vitiligo onset

25

Median

09 Apr 2026

Provenance

Purpose of dataset collection

Disease registry

Source of data extraction

Other

Collection source setting

Clinic

Image contrast

Not stated

Biological sample availability

None/not available

Structural Metadata

Details

Publishing frequency

Irregular

Version

1.0.0

Modified

15/05/2026

Distribution release date

21/10/2024

Coverage

Start date

01/06/2020

Time lag

Variable

Geographic coverage

United Kingdom

Maximum age range

100

Follow-up

Continuous

Accessibility

Language

en

Alignment with standardised data models

OTHER

Controlled vocabulary

OTHER

Format

csv

Data Access Request

Dataset pipeline status

Not available

Access rights

In Progress

Time to dataset access

Variable

Access method category

Varies based on project

Jurisdiction

UK

Data use limitation

Project-specific restrictions

Data use requirements

Project-specific restrictions

Data Controller

Momentum Data

Data Processor

Momentum Data

Demographics

Dataset Types: Health and disease, Registry

Dataset Sub-types: Others, Disease registry (research)


Collection Sources: Clinic