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Generations Study: female UK cohort (questionnaire, imaging, samples, linkage)

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Generations Study

Population Size

113,000

People

Population Size statistic card

Years

2003

Years statistic card

Associated BioSamples

Plasma

DNA

...see more

Associated BioSamples statistic card

Geographic coverage

United Kingdom

Isle of Man

Geographic coverage statistic card

Lead time

2-6 months

Lead time statistic card

Summary

Documentation

Dataset type

Health and disease

Dataset population size

Keywords

Dataset and BioSample Aliases

Observations

Observed Node

Disambiguating Description

Measured Value

Measured Property

Observation Date

Persons

Total participants recruited

113000

Count

31 Dec 2011

Persons

Participants with blood samples in biobank (~92% of total)

103000

Count

31 Dec 2011

Events

Total incident cancer cases recorded since recruitment

22839

Count

01 Feb 2026

Events

Incident Breast cancer cases recorded since recruitment

6568

Count

01 Feb 2026

Events

Incident Uterus cancer cases recorded since recruitment

1574

Count

01 Feb 2026

Events

Incident Colon cancer cases recorded since recruitment

957

Count

01 Feb 2026

Events

Incident Bronchus and Lung cancer cases recorded since recruitment

640

Count

01 Feb 2026

Events

Incident Ovary cancer cases recorded since recruitment

604

Count

01 Feb 2026

Events

Incident Melanoma cancer cases recorded since recruitment

497

Count

01 Feb 2026

Events

Incident Lymphoma cancer cases recorded since recruitment

336

Count

01 Feb 2026

Events

Incident Rectum cancer cases recorded since recruitment

291

Count

01 Feb 2026

Events

Incident Pancreas cancer cases recorded since recruitment

269

Count

01 Feb 2026

Events

Incident Kidney cancer cases recorded since recruitment

216

Count

01 Feb 2026

Events

Incident Thyroid cancer cases recorded since recruitment

198

Count

01 Feb 2026

Events

Incident Brain cancer cases recorded since recruitment

171

Count

01 Feb 2026

Events

Incident Oesophagus cancer cases recorded since recruitment

124

Count

01 Feb 2026

Findings

Peer-reviewed publications using Generations Study data

190

Count

01 Mar 2026

Provenance

Purpose of dataset collection

Source of data extraction

, , , , ,

Collection source setting

, , , ,

Patient pathway description

, , , , , , ,

Image contrast

Biological sample availability

Details

Publishing frequency

Version

Modified

22/06/2026

Citation Requirements

Coverage

Start date

31/05/2003

Time lag

Geographic coverage

, ,

Minimum age range

Maximum age range

Follow-up

Omics

Assay
Platform

Accessibility

Language

Alignment with standardised data models

, , , ,

Controlled vocabulary

, , ,

Format

, , ,

Data Access Request

Dataset pipeline status

Time to dataset access

Access request cost

Access method category

Access service description

Jurisdiction

Data use limitation

Data use requirements

Data Controller

Dataset Types: Health and disease

Dataset Sub-types: Cancer


Data Custodian: Generations Study

Collection Sources: Cohort, study, trial, Home, Community, Patient report outcome, Wearables

Publications about this dataset

The Breakthrough Generations Study: design of a long-term UK cohort study to investigate breast canc...Swerdlow AJ, Jones ME, Schoemaker MJ, Hemming J, T...

British journal of cancer

Published - 2011

The Breakthrough Generations Study: design of a long-term UK cohort study to investigate breast canc...Swerdlow AJ, Jones ME, Schoemaker MJ, Hemming J, T...

British journal of cancer

Published - 2011