HDR Gateway logo
HDR Gateway logo

Bookmarks

Wales Asthma Observatory

Population Size

Not reported

Years

1990 - 2020

Associated BioSamples

None/not available

Geographic coverage

United Kingdom

Wales

Lead time

Not applicable

Summary

WAO is a derived-dataset based on information available in the SAIL Databank including an e-cohort of patients with a history of asthma in Wales.

Documentation

The dataset currently contains (1) a table of time periods (defined with start and end dates) during which a patient had any diagnosis of asthma; (2) and table of time periods for asthma severity level (based on prescriptions), asthma exacerbations, asthma-related hospital episodes, and asthma control; and (3) a table for other asthma-related data represented as events (e.g., lung function, blood tests, and A&E visit).

Includes an e-cohort of most people with a history of asthma in Wales, derived from the SAIL Databank's core datasets. Individuals are identified from the Welsh Longitudinal General Practice (WLGP) using several case definitions (e.g., having ever GP asthma diagnosis, asthma treatment in the last 12 months, or both). Data for each patient include essential research-ready asthma-related variables derived from primary and secondary care data, such as asthma treatment step, asthma severity, asthma exacerbations, and asthma-related death. The case definitions and some clinical variables are represented as clinical states. Additional case definitions and variables are actively being added. The WAO dataset is intended to support a wide range of cross-sectional and longitudinal epidemiological asthma studies as well as asthma surveillance, service planning, and health policy.

Dataset type
Health and disease
Dataset sub-type
Not applicable

Keywords

WAO, ASTHMA, BREATHE, ELECTRONIC HEALTH RECORDS, WALES

Provenance

Purpose of dataset collection
Disease registry
Source of data extraction
EPR
Collection source setting
Clinic, Primary care - Clinic, Secondary care - Accident and Emergency, Secondary care - Outpatients, Secondary care - In-patients
Patient pathway description
The dataset cover asthma outcomes and care captured across several levels of care, including primary, emergency, and secondary care, in addition to asthma-related death.
Image contrast
Not stated
Biological sample availability
None/not available

Structural Metadata

Details

Publishing frequency
Annual
Version
1.0.0
Modified

08/10/2024

Distribution release date

30/06/2020

Citation Requirements
Wales Asthma Observatory

Coverage

Start date

01/01/1990

End date

30/06/2020

Time lag
Not applicable
Geographic coverage
United Kingdom, Wales
Maximum age range
150
Follow-up

10 Years

Accessibility

Language
en
Controlled vocabulary
READ, ICD10
Format
SQL

Data Access Request

Dataset pipeline status
Not available
Time to dataset access
Not applicable
Access request cost
Data provision is free from SAIL. Overall project costing depends on the number of people that require access to the SAIL Gateway, the activities that SAIL needs to complete (e.g. loading non-standard datasets), data refreshes, analytical work required, disclosure control process, and special case technological requirements.
Access method category
TRE/SDE
Access service description
Data use limitation
General research use
Data use requirements
Not for profit use,Project-specific restrictions,Time limit on use
Data Controller
BREATHE
Data Processor
BREATHE

Dataset Types: Health and disease


Collection Sources: Clinic, Primary care - Clinic, Secondary care - Accident and Emergency, Secondary care - Outpatients, Secondary care - In-patients