Dataset - Health Data Research Gateway

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Yorkshire Specialist Register of Cancer in Children and Young People

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DATA-CAN

Population Size

11,000

People

Population Size statistic card

Years

1974

Years statistic card

Associated BioSamples

Bone marrow

Cancer cell lines

Associated BioSamples statistic card

Geographic coverage

United Kingdom

England

Geographic coverage statistic card

Lead time

2-4 weeks

Lead time statistic card

Dataset

Publications using this dataset (external search)

Collection(s)

DATA-CAN

Summary

Documentation

Dataset type

Health and disease

Dataset population size

Associated media

https://link.springer.com/article/10.1007/s11764-020-00939-y https://link.springer.com/content/pdf/10.1007/s11764-020-00939-y.pdf https://europepmc.org/article/MED/32939686 https://online.boneandjoint.org.uk/doi/full/10.1302/1863-2548.11.170142 https://www.sciencedirect.com/science/article/abs/pii/S187778212030045X?via%3Dihub https://onlinelibrary.wiley.com/doi/pdf/10.1002/ijc.32066 https://bmjopen.bmj.com/content/7/9/e016332?cpetoc=&utm_source=TrendMD&utm_medium=cpc&utm_campaign=BMJOp_TrendMD-0#main-content https://bmjopen.bmj.com/content/9/5/e027204 https://core.ac.uk/download/pdf/199223946.pdf https://clinicaltrials.gov/ct2/show/NCT02598401 https://www.researchgate.net/publication/333718450_British_OsteoNEcrosis_Study_BONES_protocol_a_prospective_cohort_study_to_examine_the_natural_history_of_osteonecrosis_in_older_children_teenagers_and_young_adults_with_acute_lymphoblastic_leukaemia_an https://obgyn.onlinelibrary.wiley.com/doi/full/10.1111/aogs.13584?af=R https://pubmed.ncbi.nlm.nih.gov/30247205/https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6276864/https://journals.lww.com/epidem/Fulltext/2019/01000/The_Association_Between_Childhood_Leukemia_and.11.aspx

Keywords

Observations

Observed Node	Disambiguating Description	Measured Value	Measured Property	Observation Date
Persons	Approximately 11,000 patients	11000	count	25 Jan 2021

Provenance

Purpose of dataset collection

Source of data extraction

Collection source setting

, , ,

Patient pathway description

Image contrast

Biological sample availability

Structural Metadata

Details

Publishing frequency

Version

Modified

08/10/2024

Distribution release date

12/01/2019

Citation Requirements

Coverage

Start date

01/01/1974

Time lag

Geographic coverage

, ,

Maximum age range

Follow-up

Accessibility

Language

Alignment with standardised data models

Controlled vocabulary

, , , ,

Format

, ,

Data Access Request

Dataset pipeline status

Access rights

, , https://lida.leeds.ac.uk/data/

Time to dataset access

Access request cost

Access method category

Access service description

Data use limitation

Data use requirements

Data Controller

Data Processor