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Leeds-IQVIA Collaboration

Population Size

Not reported
Population Size statistic card

Years

1990

Years statistic card

Associated BioSamples

Availability to be confirmed

Associated BioSamples statistic card

Geographic coverage

United Kingdom

England

...see more

Geographic coverage statistic card

Lead time

1-2 months

Lead time statistic card

Summary

This uses the data within PPM+, the EHR for the Leeds Cancer Centre and Leeds Teaching Hospitals. It includes all patients diagnosed with cancer since 1990, all chemotherapy since 1993, all radiotherapy since 1994. It integrates all sources of EHR data.

Documentation

This uses the data within PPM+, the EHR for the Leeds Cancer Centre and Leeds Teaching Hospitals. It includes all patients diagnosed with cancer since 1990, all chemotherapy since 1993, all radiotherapy since 1994. It integrates all sources of electronic data including in-patient admissions, out-patient events, all radiology reports, all pathology reports, all blood tests, all microbiology, all letters/annotations generated digitally. It collects detailed diagnosis information on patients referred with a suspicion of/diagnosis of cancer and generates the outputs which support national cancer registration, cancer outcomes services dataset, SACT (chemo), RTDS (radiotherapy), cancer waiting times. It contains data on >300,000 cancer patients which reflect Leeds activity as a local hospital for the population of 850,000, the regional cancer centre for 2.7M and the specialist referral centre for rare cancers (paediatric, soft-tissue sarcoma) for the 5.4M from Yorkshire & Humber. This dataset has been used to examine diagnosis to death care of cohorts of cancer patients with lung, breast, colorectal, ovary, bladder cancer including all recurrence events and hence can describe time to progression, progression-free and overall survival from first diagnosis, 1st recurrence, 2nd recurrence.

Dataset type

Health and disease

Dataset sub-type

Not applicable

Keywords

Provenance

Purpose of dataset collection

Study

Source of data extraction

EPR

Collection source setting

Clinic, Secondary care - Accident and Emergency, Secondary care - Outpatients, Secondary care - In-patients, Prescribing - Community pharmacy

Patient pathway description

Cancer diagnosis and treatment pathway

Image contrast

Not stated

Biological sample availability

Availability to be confirmed

Structural Metadata

Details

Publishing frequency

Continuous

Version

1.0.0

Modified

08/10/2024

Distribution release date

31/01/2021

Citation Requirements

Leeds Teaching Hospitals Trust (LTHT) and IQVIA

Coverage

Start date

01/01/1990

Time lag

Not applicable

Geographic coverage

United Kingdom, England, Yorkshire and The Humber, Leeds

Maximum age range

150

Follow-up

10 Years

Accessibility

Language

en

Controlled vocabulary

OPCS4, DM+D, ODS, ICD10

Format

text/csv, text/xml

Data Access Request

Dataset pipeline status

Not available

Time to dataset access

1-2 months

Access request cost

Calculated on individual basis

Access method category

Varies based on project

Access service description

Data Access Request Committee

Data use limitation

General research use

Data use requirements

Collaboration required,Ethics approval required

Data Controller

Leeds Teaching Hospitals Trust (LTHT)

Data Processor

Leeds Teaching Hospitals Trust (LTHT)

Dataset Types: Health and disease


Collection Sources: Clinic, Secondary care - Accident and Emergency, Secondary care - Outpatients, Secondary care - In-patients, Prescribing - Community pharmacy

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