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Leeds-IQVIA Collaboration

Population Size

Not reported

Years

1990

Associated BioSamples

Availability to be confirmed

Geographic coverage

United Kingdom

England

...see more

Lead time

Not applicable

Summary

This uses the data within PPM+, the EHR for the Leeds Cancer Centre and Leeds Teaching Hospitals. It includes all patients diagnosed with cancer since 1990, all chemotherapy since 1993, all radiotherapy since 1994. It integrates all sources of EHR data.

Documentation

This uses the data within PPM+, the EHR for the Leeds Cancer Centre and Leeds Teaching Hospitals. It includes all patients diagnosed with cancer since 1990, all chemotherapy since 1993, all radiotherapy since 1994. It integrates all sources of electronic data including in-patient admissions, out-patient events, all radiology reports, all pathology reports, all blood tests, all microbiology, all letters/annotations generated digitally. It collects detailed diagnosis information on patients referred with a suspicion of/diagnosis of cancer and generates the outputs which support national cancer registration, cancer outcomes services dataset, SACT (chemo), RTDS (radiotherapy), cancer waiting times. It contains data on >300,000 cancer patients which reflect Leeds activity as a local hospital for the population of 850,000, the regional cancer centre for 2.7M and the specialist referral centre for rare cancers (paediatric, soft-tissue sarcoma) for the 5.4M from Yorkshire & Humber. This dataset has been used to examine diagnosis to death care of cohorts of cancer patients with lung, breast, colorectal, ovary, bladder cancer including all recurrence events and hence can describe time to progression, progression-free and overall survival from first diagnosis, 1st recurrence, 2nd recurrence.

Dataset type
Health and disease
Dataset sub-type
Not applicable

Keywords

Cancer, Electronic Health Record, Radiology, Pathology, Diagnosis

Provenance

Purpose of dataset collection
Study
Source of data extraction
EPR
Collection source setting
Clinic, Secondary care - Accident and Emergency, Secondary care - Outpatients, Secondary care - In-patients, Prescribing - Community pharmacy
Patient pathway description
Cancer diagnosis and treatment pathway
Image contrast
Not stated
Biological sample availability
Availability to be confirmed

Structural Metadata

Details

Publishing frequency
Continuous
Version
1.0.0
Modified

08/10/2024

Distribution release date

31/01/2021

Citation Requirements
Leeds Teaching Hospitals Trust (LTHT) and IQVIA

Coverage

Start date

01/01/1990

Time lag
Not applicable
Geographic coverage
United Kingdom, England, Yorkshire and The Humber, Leeds
Maximum age range
150
Follow-up

10 Years

Accessibility

Language
en
Controlled vocabulary
OPCS4, DM+D, ODS, ICD10
Format
text/csv, text/xml

Data Access Request

Dataset pipeline status
Not available
Time to dataset access
Not applicable
Access request cost
Calculated on individual basis
Access method category
Varies based on project
Access service description
Data Access Request Committee
Data use limitation
General research use
Data use requirements
Collaboration required, Ethics approval required
Data Controller
Leeds Teaching Hospitals Trust (LTHT)
Data Processor
Leeds Teaching Hospitals Trust (LTHT)

Dataset Types: Health and disease


Collection Sources: No collection sources listed