Bookmarks
Real Time Data Network (RTDN)
Population Size
10,000
People
Years
2020
Associated BioSamples
None/not available
Geographic coverage
United Kingdom
Lead time
Not applicable
Summary
Near-real time aggregated cancer activity data from 8 major sites across the UK, for the purpose of testing the effect of the COVID-19 pandemic on cancer diagnostic and cancer treatment pathways.
Documentation
This data set has been designed to support the aim to improve NHS cancer patient outcomes by sharing real-time data about UK cancer services during the COVID-19 pandemic and afterwards. This will be achieved by creating a network of UK-wide hospitals large and representative enough to allow national and local data analysis, enabling insights that are not possible from current national datasets. All hospitals share an agreed minimum dataset at minimum quality on a weekly basis (Level 1) with the option to share deeper datasets if that fits their digital maturity, patient choice, information governance and organisational priorities (Level 2 and 3). All data will be kept and shared under appropriate and agreed information governance and legal contracts, and via Trusted Research Environment(s).
Dataset type
Health and disease
Dataset sub-type
Not applicable
Dataset population size
10,000
Associated media
Keywords
cancer, COVID-19, coronavirus
Observations
Observed Node | Disambiguating Description | Measured Value | Measured Property | Observation Date |
|---|---|---|---|---|
Persons | People with a diagnosis of cancer, and people with presentation of symptoms relating to cancer (chief complaint in SNOMED CT) | 10000 | count | 01 Apr 2021 |
Provenance
Collection source setting
Primary care - Clinic, Secondary care - Outpatients, Secondary care - In-patients, Community, Home
Patient pathway description
Secondary care (plans to include primary and community care)
Image contrast
Not stated
Biological sample availability
None/not available
Structural Metadata
Details
Publishing frequency
Continuous
Version
1.0.0
Modified
08/10/2024
Citation Requirements
DATA-CAN
Coverage
Start date
06/01/2020
Time lag
Less than 1 week
Geographic coverage
United Kingdom
Maximum age range
150
Follow-up
6 - 12 Months
Accessibility
Language
en
Controlled vocabulary
OPCS4, SNOMED CT, NHS NATIONAL CODES, NHS SCOTLAND NATIONAL CODES, NHS WALES NATIONAL CODES, ICD10
Format
text/csv, text/xml, application/vnd.ms-excel
Data Access Request
Dataset pipeline status
Not available
Access rights
Time to dataset access
Not applicable
Access request cost
Data access for NHS management and members of the network is free. DATA- CAN will deliver and share basic analyses and dashboards. Additional costs of further analysis and research will need external funding
Access method category
TRE/SDE
Access service description
The Yorkshire and Humber Care Record (YHCR) solution – The Data Ark (Which fulfils the requirements of a Trusted Research Environment) has been developed by the YH health and social care partners with the intention of creating a joint electronic Population Health Management (PHM) Solution. DATA-CAN has a collaboration arrangement with the YHCR to use this technology for RTDN.
Jurisdiction
GB-ENG, GB-EAW, GB-NIR, GB-SCT, GB-WLS, GB-GBN
Data use limitation
General research use
Data use requirements
Ethics approval required, Geographical restrictions, Institution-specific restrictions, User-specific restriction
Data Controller
UCL Partners
Data Processor
DATA-CAN