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Real Time Data Network (RTDN)

Population Size

10,000

People

Population Size statistic card

Years

2020

Years statistic card

Associated BioSamples

None/not available

Associated BioSamples statistic card

Geographic coverage

United Kingdom

Geographic coverage statistic card

Lead time

1-2 months

Lead time statistic card

Summary

Near-real time aggregated cancer activity data from 8 major sites across the UK, for the purpose of testing the effect of the COVID-19 pandemic on cancer diagnostic and cancer treatment pathways.

Documentation

This data set has been designed to support the aim to improve NHS cancer patient outcomes by sharing real-time data about UK cancer services during the COVID-19 pandemic and afterwards. This will be achieved by creating a network of UK-wide hospitals large and representative enough to allow national and local data analysis, enabling insights that are not possible from current national datasets. All hospitals share an agreed minimum dataset at minimum quality on a weekly basis (Level 1) with the option to share deeper datasets if that fits their digital maturity, patient choice, information governance and organisational priorities (Level 2 and 3). All data will be kept and shared under appropriate and agreed information governance and legal contracts, and via Trusted Research Environment(s).

Dataset type

Health and disease

Dataset sub-type

Not applicable

Dataset population size

10000

Keywords

Observations

Observed Node

Disambiguating Description

Measured Value

Measured Property

Observation Date

Persons

People with a diagnosis of cancer, and people with presentation of symptoms relating to cancer (chief complaint in SNOMED CT)

10000

count

01 Apr 2021

Provenance

Collection source setting

Primary care - Clinic, Secondary care - Outpatients, Secondary care - In-patients, Community, Home

Patient pathway description

Secondary care (plans to include primary and community care)

Image contrast

Not stated

Biological sample availability

None/not available

Structural Metadata

Details

Publishing frequency

Continuous

Version

1.0.0

Modified

08/10/2024

Citation Requirements

DATA-CAN

Coverage

Start date

06/01/2020

Time lag

Less than 1 week

Geographic coverage

United Kingdom

Maximum age range

150

Follow-up

6 - 12 Months

Accessibility

Language

en

Controlled vocabulary

OPCS4, SNOMED CT, NHS NATIONAL CODES, NHS SCOTLAND NATIONAL CODES, NHS WALES NATIONAL CODES, ICD10

Format

text/csv, text/xml, application/vnd.ms-excel

Data Access Request

Dataset pipeline status

Not available

Time to dataset access

1-2 months

Access request cost

Data access for NHS management and members of the network is free. DATA- CAN will deliver and share basic analyses and dashboards. Additional costs of further analysis and research will need external funding

Access method category

TRE/SDE

Access service description

The Yorkshire and Humber Care Record (YHCR) solution – The Data Ark (Which fulfils the requirements of a Trusted Research Environment) has been developed by the YH health and social care partners with the intention of creating a joint electronic Population Health Management (PHM) Solution. DATA-CAN has a collaboration arrangement with the YHCR to use this technology for RTDN.

Jurisdiction

GB-ENG, GB-EAW, GB-NIR, GB-SCT, GB-WLS, GB-GBN

Data use limitation

General research use

Data use requirements

Ethics approval required,Geographical restrictions,Institution-specific restrictions,User-specific restriction

Data Controller

UCL Partners

Data Processor

DATA-CAN

Dataset Types: Health and disease


Collection Sources: Primary care - Clinic, Secondary care - Outpatients, Secondary care - In-patients, Community, Home

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