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SAIL Dementia e-Cohort (SDEC)

Population Size

Not reported

Years

2019 - 2021

Associated BioSamples

None/not available

Geographic coverage

United Kingdom

Wales

Lead time

Not applicable

Summary

This dataset is a population-based electronic cohort containing health-related information on people with and without diagnosed dementia. It was developed by applying coding algorithms to linked routinely-collected datasets.

Documentation

The SAIL Dementia e-Cohort is a population-based electronic cohort (e-cohort) containing health-related information on people with and without diagnosed dementia.

By applying coding algorithms to linked routinely-collected datasets, a novel Dementia Platform UK (DPUK) cohort was developed to maximise generalisability and utility for a broad range of research questions and methodologies. It aims to minimise duplication of effort, increase reproducibility, reduce costs, and allow a broader range of researchers to apply to use SAIL data.

Dataset type
Health and disease
Dataset sub-type
Not applicable
Associated media
https://saildatabank.com/about-us/;,;https://doi.org/10.23889%2Fijpds.v5i1.1121

Keywords

Dementia, SAIL, SDEC, Health & Wellbeing, Growing Old, core

Observations

Observed Node
Disambiguating Description
Measured Value
Measured Property
Observation Date

Events

Approx 70-80% coverage of Welsh population through GP registrations.

3000000

Count

31 Aug 2021

Provenance

Source of data extraction
EPR
Collection source setting
Clinic, Primary care - Clinic, Secondary care - Outpatients, Secondary care - In-patients
Patient pathway description
Primary care
Image contrast
Not stated
Biological sample availability
None/not available

Structural Metadata

Details

Publishing frequency
Monthly
Version
7.0.0
Modified

08/10/2024

Distribution release date

26/01/2021

Citation Requirements
Derived dataset by HDR UK team at Swansea University

Coverage

Start date

01/03/2019

End date

26/01/2021

Time lag
Other
Geographic coverage
United Kingdom, Wales
Minimum age range
18
Maximum age range
150
Follow-up
1 - 10 Years

Accessibility

Language
en
Controlled vocabulary
READ, ICD10, ICD9
Format
SQL database table

Data Access Request

Dataset pipeline status
Not available
Access rights
https://saildatabank.com/data/apply-to-work-with-the-data/
Time to dataset access
Not applicable
Access request cost
Data provision is free from SAIL. Overall project costing depends on the number of people that require access to the SAIL Gateway, the activities that SAIL needs to complete (e.g. loading non-standard datasets), data refreshes, analytical work required, disclosure control process, and special case technological requirements.
Access method category
TRE/SDE
Access service description
The SAIL Databank is powered by the UK Secure e-Research Platform (UKSeRP). Following approval through safeguard processes, access to project-specific data within the secure environment is permitted using two-factor authentication.
Jurisdiction
GB
Data use limitation
General research use,Research-specific restrictions
Data use requirements
Project-specific restrictions,User-specific restriction
Data Controller
SAIL Databank
Data Processor
SAIL Databank

Dataset Types: Health and disease

Collection Sources: Clinic, Primary care - Clinic, Secondary care - Outpatients, Secondary care - In-patients