Dataset - Health Data Research Gateway

Bookmarks

SAIL Dementia e-Cohort (SDEC)

Population Size

Not reported

Population Size statistic card

Years

2019 - 2021

Years statistic card

Associated BioSamples

None/not available

Associated BioSamples statistic card

Geographic coverage

United Kingdom

Wales

Geographic coverage statistic card

Lead time

2-6 months

Lead time statistic card

Dataset

Publications using this dataset (external search)

Collection(s)

Data Custodian

Summary

This dataset is a population-based electronic cohort containing health-related information on people with and without diagnosed dementia. It was developed by applying coding algorithms to linked routinely-collected datasets.

Documentation

The SAIL Dementia e-Cohort is a population-based electronic cohort (e-cohort) containing health-related information on people with and without diagnosed dementia.

By applying coding algorithms to linked routinely-collected datasets, a novel Dementia Platform UK (DPUK) cohort was developed to maximise generalisability and utility for a broad range of research questions and methodologies. It aims to minimise duplication of effort, increase reproducibility, reduce costs, and allow a broader range of researchers to apply to use SAIL data.

Dataset type

Health and disease

Dataset sub-type

Not applicable

Associated media

https://saildatabank.com/about-us/https://doi.org/10.23889%2Fijpds.v5i1.1121

Keywords

Observations

Observed Node	Disambiguating Description	Measured Value	Measured Property	Observation Date
Events	Approx 70-80% coverage of Welsh population through GP registrations.	3000000	Count	31 Aug 2021

Provenance

Source of data extraction

EPR

Collection source setting

Clinic, Primary care - Clinic, Secondary care - Outpatients, Secondary care - In-patients

Patient pathway description

Primary care

Image contrast

Not stated

Biological sample availability

None/not available

Structural Metadata

Details

Publishing frequency

Monthly

Version

7.0.0

Modified

08/10/2024

Distribution release date

26/01/2021

Citation Requirements

Derived dataset by HDR UK team at Swansea University

Coverage

Start date

01/03/2019

End date

26/01/2021

Time lag

Other

Geographic coverage

United Kingdom, Wales

Minimum age range

Maximum age range

150

Follow-up

1 - 10 Years

Accessibility

Language

Controlled vocabulary

READ, ICD10, ICD9

Format

SQL database table

Data Access Request

Dataset pipeline status

Not available

Access rights

https://saildatabank.com/data/apply-to-work-with-the-data/

Time to dataset access

2-6 months

Access request cost

Data provision is free from SAIL. Overall project costing depends on the number of people that require access to the SAIL Gateway, the activities that SAIL needs to complete (e.g. loading non-standard datasets), data refreshes, analytical work required, disclosure control process, and special case technological requirements.

Access method category

TRE/SDE

Access service description

The SAIL Databank is powered by the UK Secure e-Research Platform (UKSeRP). Following approval through safeguard processes, access to project-specific data within the secure environment is permitted using two-factor authentication.

Jurisdiction

Data use limitation

General research use,Research-specific restrictions

Data use requirements

Project-specific restrictions,User-specific restriction

Data Controller

SAIL Databank

Data Processor