Dataset - Health Data Research Gateway

Bookmarks

Children’s Kidney Cancers - Great Ormond Street Hospital

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DATA-CAN

Population Size

650

People

Population Size statistic card

Years

2012 - 2022

Years statistic card

Associated BioSamples

None/not available

Associated BioSamples statistic card

Geographic coverage

United Kingdom

England

Geographic coverage statistic card

Lead time

2-6 months

Lead time statistic card

Dataset

Publications using this dataset (external search)

Collection(s)

DATA-CAN

Summary

Documentation

Dataset type

Health and disease

Dataset population size

Associated media

https://www.uhs.nhs.uk/Media/SUHTExtranet/Services/PaediatricOncology/Solids/UMBRELLA-protocol-UK-V5.pdf https://www.authorea.com/users/5588/articles/445428-the-covid-19-pandemic-a-rapid-global-response-for-children-with-cancer-from-siop-cog-siop-e-siop-podc-ipso-pros-cci-and-st-jude-global?commit=43d910681b467e87b9bb6d2f8695ce966cd12213 https://siop-rtsg.org/index.php/news/71-experts-in-kidney-cancer-from-the-children-s-cancer-and-leukaemia-group-have-published-a-new-recommendation-on-when-a-biopsy-of-the-suspected-tumour-should-be-taken https://pubmed.ncbi.nlm.nih.gov/12947062/https://www.sciencedirect.com/science/article/abs/pii/S0959804912004984 https://www.cancerresearchuk.org/about-cancer/find-a-clinical-trial/a-trial-looking-at-treatment-for-children-and-young-people-with-wilms-tumour-siop-wt-2001#undefined https://www.childrenwithcancer.org.uk/research/projects/wilms-tumour-diagnosis/https://pubmed.ncbi.nlm.nih.gov/22415585/https://www.childrenwithcancer.org.uk/research/projects/molecular-evolution-wilms-tumour/https://www.annalsofoncology.org/cms/10.1093/annonc/mds025/attachment/ea4df72e-99de-473a-ae59-0b59200523de/mmc1.pdf

Keywords

Observations

Observed Node	Disambiguating Description	Measured Value	Measured Property	Observation Date
Persons	Cancer study participants	650	Count	02 Jan 2021

Provenance

Purpose of dataset collection

Source of data extraction

Collection source setting

Patient pathway description

Image contrast

Biological sample availability

Structural Metadata

Details

Publishing frequency

Version

Modified

08/10/2024

Distribution release date

12/01/2019

Citation Requirements

Coverage

Start date

04/01/2012

End date

31/12/2022

Time lag

Geographic coverage

, ,

Maximum age range

Follow-up

Accessibility

Language

Alignment with standardised data models

Controlled vocabulary

Format

, , ,

Data Access Request

Dataset pipeline status

Access rights

https://www.gosh.nhs.uk/about-us/contact-us/contact-our-medical-records-department, https://www.google.com/url?sa=t&rct=j&q=&esrc=s&source=web&cd=&cad=rja&uact=8&ved=2ahUKEwif3a7Jud_tAhWpRhUIHVN7B4QQFjAFegQIChAC&url=https%3A%2F%2Fwww.gosh.nhs.uk%2Ffile%2F17676%2Fdownload&usg=AOvVaw0vuwh26mhjknz1afc_oPRF, https://www.gosh.nhs.uk/teenagers/your-hospital-visit/your-information, https://www.gosh.nhs.uk/about-us/contact-us-hospital, https://www.gosh.nhs.uk/privacy

Time to dataset access

Access request cost

Access method category

Access service description

Data use limitation

Data use requirements

Data Controller

Data Processor