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Blood Cancer Cardiff and the Vale Dataset (BCCV)

Population Size

Not reported
Population Size statistic card

Years

2019

Years statistic card

Associated BioSamples

None/not available

Associated BioSamples statistic card

Geographic coverage

Wales

Geographic coverage statistic card

Lead time

1-2 months

Lead time statistic card

Summary

The dataset contains the details of patients who have visited a Myeloma clinic.

Documentation

All patients receiving systemic anti-cancer therapies in or funded by the NHS are covered by the dataset.

The data is from eFroms filled in during a patient visit in a Myeloma clinic.

Dataset type

Health and disease

Dataset sub-type

Not applicable

Associated media

https://saildatabank.com/data/apply-to-work-with-the-data/https://popdatasci.swan.ac.uk/centres-of-excellence/sail/https://saildatabank.com/

Keywords

Observations

Observed Node

Disambiguating Description

Measured Value

Measured Property

Observation Date

Events

The dataset contains the details of patients that have blood cancer in Cardiff and the Vale.

5000

Palliative Day Care Events

19 Jul 2021

Provenance

Source of data extraction

Electronic survey

Collection source setting

Clinic, Primary care - Clinic, Secondary care - Outpatients, Secondary care - In-patients, Community

Patient pathway description

All pathways about prescribed systemic anti-cancer therapy.

Image contrast

Not stated

Biological sample availability

None/not available

Structural Metadata

Details

Publishing frequency

Other

Version

1.0.0

Modified

08/10/2024

Citation Requirements

Cardiff and the Vale Health Board

Coverage

Start date

30/06/2019

Time lag

1-2 months

Geographic coverage

Wales

Maximum age range

150

Follow-up

Unknown

Accessibility

Language

en

Controlled vocabulary

LOCAL

Format

SQL database table

Data Access Request

Dataset pipeline status

Not available

Access rights

https://saildatabank.com/about-us/

Time to dataset access

1-2 months

Access request cost

Data provision is free from SAIL. Overall project costing depends on the number of people that require access to the SAIL Gateway, the activities that SAIL needs to complete (e.g. loading non-standard datasets), data refreshes, analytical work required, disclosure control process, and special case technological requirements.

Access service description

The SAIL Databank is powered by the UK Secure e-Research Platform (UKSeRP). Following approval through safeguard processes, access to project-specific data within the secure environment is permitted using two-factor authentication.

Jurisdiction

GB-WLS

Data use limitation

Research-specific restrictions

Data use requirements

Project-specific restrictions

Data Controller

National Cancer Registry and Analysis Service (NCRAS)

Data Processor

SAIL Databank

Dataset Types: Health and disease

Collection Sources: Clinic, Primary care - Clinic, Secondary care - Outpatients, Secondary care - In-patients, Community

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