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Welsh Cancer Intelligence and Surveillance Unit (WCSU)

Population Size

Not reported

Years

1994 - 2021

Associated BioSamples

None/not available

Geographic coverage

United Kingdom

Wales

Lead time

Other

Summary

The Welsh Cancer Intelligence & Surveillance Unit (WCISU) is the National Cancer Registry for Wales and its primary role is to record, store and report on all incidence of cancer for the resident population of Wales wherever they are treated.

Documentation

The Welsh Cancer Intelligence & Surveillance Unit (WCISU) is the National Cancer Registry for Wales and its primary role is to record, store and report on all incidence of cancer for the resident population of Wales wherever they are treated. Cancer registration in Wales began almost five decades ago and today’s electronic database which holds records going back to 1972 contains in the region of 686,000 records.

WCISU collects data about occurrences of cancer in Welsh residents via direct or indirect submissions from Welsh Hospitals.

Staging of malignant melanoma (ICD 10 code C43), breast (C50), colorectal (C18-C20) and cervix (C53) started in 2001 since this was when we started receiving pathological information. Staging for all other cancers started in 2010.

Treatment information started in 1995.

Dataset type
Health and disease
Dataset sub-type
Not applicable
Associated media
https://saildatabank.com/about-us/https://popdatasci.swan.ac.uk/centres-of-excellence/sail/https://saildatabank.com/https://docs.hiru.swan.ac.uk/display/SATP/WCSU+-+Welsh+Cancer+Intelligence+and+Surveillance+Unit

Keywords

CANCER, SAIL, WCSU, core-res, WCISU, Health & Wellbeing, Children & Young People, Growing Old, Inequality & Social Inclusion, Housing & Communities, World of Work, WICSU

Observations

Observed Node
Disambiguating Description
Measured Value
Measured Property
Observation Date

Events

The Welsh Cancer Intelligence & Surveillance Unit (WCISU) is the National Cancer Registry for Wales and its primary role is to record, store and report on all incidence of cancer for the resident population of Wales wherever they are treated.

714794

Welsh Cancer Neoplasm and Treatment Events

19 Jul 2021

Provenance

Source of data extraction
EPR
Collection source setting
Primary care - Clinic
Patient pathway description
All pathways about cancer
Image contrast
Not stated
Biological sample availability
None/not available

Structural Metadata

Details

Publishing frequency
Annual
Version
12.0.0
Modified

08/10/2024

Distribution release date

30/05/2019

Citation Requirements
Welsh Cancer Intelligence & Surveillance Unit (WCISU) which is a part of Public Health Wales (PHW)

Coverage

Start date

01/01/1994

End date

04/02/2021

Time lag
1-2 months
Geographic coverage
United Kingdom, Wales
Maximum age range
150
Follow-up
Unknown

Accessibility

Language
en
Controlled vocabulary
LOCAL
Format
SQL database table

Data Access Request

Dataset pipeline status
Available
Access rights
https://saildatabank.com/data/apply-to-work-with-the-data/
Time to dataset access
Other
Access request cost
Data provision is free from SAIL. Overall project costing depends on the number of people that require access to the SAIL Gateway, the activities that SAIL needs to complete (e.g. loading non-standard datasets), data refreshes, analytical work required, disclosure control process, and special case technological requirements.
Access method category
TRE/SDE
Access service description
The SAIL Databank is powered by the UK Secure e-Research Platform (UKSeRP). Following approval through safeguard processes, access to project-specific data within the secure environment is permitted using two-factor authentication.
Jurisdiction
GB
Data use limitation
General research use,Research-specific restrictions
Data use requirements
Project-specific restrictions
Data Controller
Digital Health and Care Wales (DHCW)
Data Processor
SAIL Databank

Dataset Types: Health and disease

Collection Sources: Primary care - Clinic