HDR Gateway logo
HDR Gateway logo

Bookmarks

Cancer Network Information System (CNIS / CANISC)

Population Size

Not reported

Years

1990 - 2024

Associated BioSamples

None/not available

Geographic coverage

United Kingdom

Wales

Lead time

2-6 months

Summary

Cancer Network Information System includes multidisciplinary team diagnosis, proposed treatments, and a system-generated summary of the patient’s cancer record.

Documentation

Cancer Network Information System Cymru (CaNISC) includes multidisciplinary team diagnosis, proposed treatments, and a system-generated summary of the patient’s cancer record.

The core system used across Wales has been CaNISC. This system provided the cancer patient record of treatment, the patient administration system for Velindre Cancer Centre, and was the primary source of cancer data for waiting times, clinical audit, and cancer registration.

Velindre Cancer Centre successfully migrated from CaNISC onto the new Cancer Informatics System (CIS) in November 2022.

Why is CaNISC being replaced?

Whilst CaNISC allowed multiple organisations to record the diagnosis, treatment and follow-up care information for a patient, it could only be accessed by approximately 2000 authorised health care professionals. Patients receive care in many settings outside of the cancer centres and their cancer care clinical information was often not available to other health professionals treating patients for other health related issues in other care settings.

CaNISC approached the end of its viable service as it could no longer be updated to keep pace with changing clinical practices and processes. The 2018 Cancer Delivery Plan for Wales included an action to explore the replacement of CaNISC, resulting in a business case being submitted to the Welsh Government to develop a new Cancer Information System for Wales.

Welsh Government agreed a £6.5 million investment from the Digital Priorities Investment Fund in 2019 spanning three financial years, working with Digital Health and Care Wales (DHCW), health boards and trusts to deliver the Cancer Informatics Programme.

A Data Explained report on CNIS can be found here: https://adrwales.org/wp-content/uploads/2025/02/Data_Explained_CNIS.pdf

Dataset type
Health and disease
Dataset sub-type
Not applicable

Keywords

Cancer, diagnosis, SAIL, core, CNIS, Health & Wellbeing, Growing Old, Children & Young People, Inequality & Social Inclusion

Observations

Observed Node
Disambiguating Description
Measured Value
Measured Property
Observation Date

Findings

800000

Count

01 Jan 2025

Provenance

Collection source setting
Primary care - Clinic, Secondary care - Accident and Emergency, Secondary care - Outpatients, Secondary care - In-patients
Patient pathway description
All pathways pertaining to cancer
Image contrast
Not stated
Biological sample availability
None/not available

Structural Metadata

Details

Publishing frequency
Weekly
Version
14.0.0
Modified

08/10/2024

Citation Requirements
Digital Health and Care Wales

Coverage

Start date

01/01/1990

End date

10/11/2024

Time lag
2-6 months
Geographic coverage
United Kingdom, Wales
Maximum age range
120
Follow-up
Unknown

Accessibility

Language
en
Controlled vocabulary
LOCAL
Format
SQL database table

Data Access Request

Dataset pipeline status
Not available
Time to dataset access
2-6 months
Access request cost
Data provision is free from SAIL. Overall project costing depends on the number of people that require access to the SAIL Gateway, the activities that SAIL needs to complete (e.g. loading non-standard datasets), data refreshes, analytical work required, disclosure control process, and special case technological requirements.
Access method category
TRE/SDE
Access service description
The SAIL Databank is powered by the UK Secure e-Research Platform (UKSeRP). Following approval through safeguard processes, access to project-specific data within the secure environment is permitted using two-factor authentication.
Jurisdiction
GB-GB
Data use limitation
Research-specific restrictions
Data use requirements
Project-specific restrictions
Data Controller
NHS, SAIL Databank
Data Processor
SAIL Databank

Dataset Types: Health and disease


Collection Sources: Primary care - Clinic, Secondary care - Accident and Emergency, Secondary care - Outpatients, Secondary care - In-patients