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Genomics England - Cancer
Population Size
Years
2014 - 2019
Associated BioSamples
None/not available
Geographic coverage
Lead time
2-6 months
Summary
Documentation
Cancer data are presented for either the patient level cancer diagnosis or “disease type” or the tumour specific sample details of participants in the Cancer arm of the 100,000 Genomes Project.
Data Relating to Cancer Participants:
cancer_participant_disease
For each cancer participant in the 100,000 Genomes Project, this table includes data about their cancer disease type and subtype.
cancer_participant_tumour
For each cancer participant’s tumour in the 100,000 Genomes Project, this table contains data that characterises the tumour, e.g. staging and grading; morphology and location; recurrence at time of enrolment; and the basis of diagnosis.
cancerparticipant_tumour metastatic_site
For each cancer participant in the 100,000 Genomes Project, this table contains the site of their metastatic disease in the body (if applicable) at diagnosis.
cancer_care_plan
For a proportion of cancer participants in the 100,000 Genomes Project, this table contains information from their NHS cancer care plan on their treatment and care intent, in particular outcomes of MDT meetings and coded connected data (e.g. diagnoses from scans).
cancer_surgery
For a proportion of cancer participants in the 100,000 Genomes Project, this table contains details of what surgical procedures were had, as well as the specific location of the intervention.
cancer_risk_factor_general
For a proportion of cancer participants in the 100,000 Genomes Project, this table contains data on general cancer risk factors, namely smoking status, height, weight and alcohol consumption. This table was compiled with input from GeCIP members.
cancer_risk_factor_cancer_specific:
For a proportion of cancer participants in the 100,000 Genomes Project, this table contains data on specific risk factors related to particular cancer types. This table was compiled with input from GeCIP members.
cancer_invest_imaging:
For a proportion of cancer participants in the 100,000 Genomes Project, this table contains: coded data on imaging investigations characterising the scan, its modality, anatomical site and outcome; as well as the outcome of the imaging report in free text form.
Data derived from or relating to tumour samples:
cancer_invest_sample_pathology:
For a proportion of cancer participants in the 100,000 Genomes Project, this table contains full pathology reports and other related data on and from their tumour samples around diagnosis and characterisation of the cancer. Please note that much of this information is also found in the clinic_sample and cancer_participant_tumour tables.
cancer_specific_pathology:
For a proportion tumours from cancer participants in the 100,000 Genomes Project, this table contains pathology data specific to that participant’s cancer type. This may provide additional data to the cancer_invest_sample_pathology and cancer_participant_tumour tables.
cancer_systemic_anti_cancer_therapy:
For a proportion tumour
Dataset type
Dataset sub-type
Keywords
Observations
Observed Node | Disambiguating Description | Measured Value | Measured Property | Observation Date |
---|---|---|---|---|
Persons | Cancer Tumour - Number of genomes | Not reported | Count | 01 Jan 1970 |
Persons | Rare Disease Participants | Not reported | Count | 01 Jan 1970 |
Persons | Cancer Germline - Number of genomes | Not reported | Count | 01 Jan 1970 |
Persons | Cancer Participants | Not reported | Count | 01 Jan 1970 |
Persons | Rare Disease - Number of genomes | Not reported | Count | 01 Jan 1970 |
Provenance
Patient pathway description
Image contrast
Biological sample availability
Structural Metadata
Details
Publishing frequency
Version
Modified
08/10/2024
Distribution release date
30/03/2023
Citation Requirements
Coverage
Start date
01/01/2014
End date
01/01/2019
Time lag
Maximum age range
Follow-up
Accessibility
Language
Controlled vocabulary
Format
Data Access Request
Dataset pipeline status
Time to dataset access
Access request cost
Access service description
Jurisdiction
Data Controller
Data Processor