HDR Gateway logo
HDR Gateway logo

Bookmarks

Genomics England - Secondary Data - NHSE

Population Size

Not reported

Years

1971 - 2022

Associated BioSamples

None/not available

Geographic coverage

Not reported

Lead time

2-6 months

Summary

NHS national data sets collect information from care records, systems and organisations on specific areas of health and care.

Documentation

Secondary data tables are the corpus of curated data we receive from national data warehouses for all eligible participants not belonging in a data restricting cohort and not registered in Northern Ireland, Wales or Scotland. They are mostly longitudinal in nature and agnostic to the recruited disease. Data at the point of release captures all activity contained in the period covered within each of the datasets up to the latest quarter published by NHSE and end of calendar year for PHE/NCRAS.

Please Note: The linking files MH_bridge and DID_bridge will no longer be provided as part of the main programme release. Participant id is already been included in all tables making these files redundant.

  • HES: Hospital Episode Statistics containing details of all commissioned activity during admissions, outpatient appointments and A&E attendances.
  • DID: Metadata (demographics, modalities, ordering entity and dates) on diagnostic imaging tests collated from local radiology information systems.
  • MORTALITY/CANCER_REGISTRY: Office of National Statistics registry data for cancer registrations and deaths inside and outside hospitals. Issue of death certificates and cancer network registrations are a requirement for an entry to these manifests.
  • COVID: Data on covid test results for 100K participants. Pre Data Release V14 this data was found in the frequent release folder. For more information please see Clinical and phenotype data Secondary Data - COVID.
  • MHMDS: Data on patients receiving care in NHS specialist mental health services. Reporting care period for this dataset is up to March '14.
  • MHLDDS: Data on patients receiving care in NHS specialist mental health services. Reporting care period for this dataset is from March '14 to March '16.
  • MHSDS: Data on patients receiving care in NHS specialist mental health services. Reporting care period for this dataset us from March '16 to March '19.
Dataset type
Health and disease
Dataset sub-type
Not applicable

Keywords

genome, Hospital Episode Statistics, DNA, DATA-CAN, genomics, data

Observations

Observed Node
Disambiguating Description
Measured Value
Measured Property
Observation Date

Persons

Cancer Tumour - Number of genomes

Not reported

Count

01 Jan 1970

Persons

Rare Disease Participants

Not reported

Count

01 Jan 1970

Persons

Cancer Germline - Number of genomes

Not reported

Count

01 Jan 1970

Persons

Cancer Participants

Not reported

Count

01 Jan 1970

Persons

Rare Disease - Number of genomes

Not reported

Count

01 Jan 1970

Provenance

Patient pathway description
Secondary care.
Image contrast
Not stated
Biological sample availability
None/not available

Structural Metadata

Details

Publishing frequency
Quarterly
Version
17.0.0
Modified

08/10/2024

Distribution release date

30/03/2023

Citation Requirements
NHS Digital

Coverage

Start date

09/07/1971

End date

08/04/2022

Time lag
2-6 months
Maximum age range
150
Follow-up

10 Years

Accessibility

Language
en
Controlled vocabulary
READ, SNOMED CT, NHS NATIONAL CODES, ICD10, OPCS4, ODS
Format
Multiple Formats Available

Data Access Request

Dataset pipeline status
Not available
Time to dataset access
2-6 months
Access request cost
Fees will be dependent on the type of access that is necessary. Raw data is not eligible for export. Summary-level data may be exported provided that it is approved through the Genomics England Airlock Process
Access service description

More information about the Genomics England Research Environment can be found here:

https://www.genomicsengland.co.uk/about-genomics-england/research-environment/ https://research-help.genomicsengland.co.uk/display/GERE/1.+The+Genomics+England+Research+Environment

Genomics England 100k participants have consented to longitudinal lifetime followup and recontact safely through our clinical network. BRST (Bioinformatics Research Services) are a team of bioinformatics who know the dataset inside out and provide consultancy projects on a case by case basis. Our network of clinical and medical experts can be made available on case by case basis. Researchers have the opportunity to work with our and access the GeCIP network who are a community of world-leading experts in specific cancers and rare diseases.

Jurisdiction
GB-GBN
Data Controller
NHS DIGITAL
Data Processor
GENOMICS ENGLAND

Dataset Types: Health and disease


Collection Sources: