Bookmarks
Genomics England - Secondary Data - NHSE
Population Size
Years
1971 - 2022
Associated BioSamples
None/not available
Geographic coverage
Lead time
2-6 months
Summary
Documentation
Secondary data tables are the corpus of curated data we receive from national data warehouses for all eligible participants not belonging in a data restricting cohort and not registered in Northern Ireland, Wales or Scotland. They are mostly longitudinal in nature and agnostic to the recruited disease. Data at the point of release captures all activity contained in the period covered within each of the datasets up to the latest quarter published by NHSE and end of calendar year for PHE/NCRAS.
Please Note: The linking files MH_bridge and DID_bridge will no longer be provided as part of the main programme release. Participant id is already been included in all tables making these files redundant.
- HES: Hospital Episode Statistics containing details of all commissioned activity during admissions, outpatient appointments and A&E attendances.
- DID: Metadata (demographics, modalities, ordering entity and dates) on diagnostic imaging tests collated from local radiology information systems.
- MORTALITY/CANCER_REGISTRY: Office of National Statistics registry data for cancer registrations and deaths inside and outside hospitals. Issue of death certificates and cancer network registrations are a requirement for an entry to these manifests.
- COVID: Data on covid test results for 100K participants. Pre Data Release V14 this data was found in the frequent release folder. For more information please see Clinical and phenotype data Secondary Data - COVID.
- MHMDS: Data on patients receiving care in NHS specialist mental health services. Reporting care period for this dataset is up to March '14.
- MHLDDS: Data on patients receiving care in NHS specialist mental health services. Reporting care period for this dataset is from March '14 to March '16.
- MHSDS: Data on patients receiving care in NHS specialist mental health services. Reporting care period for this dataset us from March '16 to March '19.
Dataset type
Dataset sub-type
Keywords
Observations
Observed Node | Disambiguating Description | Measured Value | Measured Property | Observation Date |
|---|---|---|---|---|
Persons | Cancer Tumour - Number of genomes | Not reported | Count | 01 Jan 1970 |
Persons | Rare Disease Participants | Not reported | Count | 01 Jan 1970 |
Persons | Cancer Germline - Number of genomes | Not reported | Count | 01 Jan 1970 |
Persons | Cancer Participants | Not reported | Count | 01 Jan 1970 |
Persons | Rare Disease - Number of genomes | Not reported | Count | 01 Jan 1970 |
Provenance
Patient pathway description
Image contrast
Biological sample availability
Structural Metadata
Details
Publishing frequency
Version
Modified
08/10/2024
Distribution release date
30/03/2023
Citation Requirements
Coverage
Start date
09/07/1971
End date
08/04/2022
Time lag
Maximum age range
Follow-up
10 Years
Accessibility
Language
Controlled vocabulary
Format
Data Access Request
Dataset pipeline status
Time to dataset access
Access request cost
Access service description
More information about the Genomics England Research Environment can be found here:
https://www.genomicsengland.co.uk/about-genomics-england/research-environment/ https://research-help.genomicsengland.co.uk/display/GERE/1.+The+Genomics+England+Research+Environment
Genomics England 100k participants have consented to longitudinal lifetime followup and recontact safely through our clinical network. BRST (Bioinformatics Research Services) are a team of bioinformatics who know the dataset inside out and provide consultancy projects on a case by case basis. Our network of clinical and medical experts can be made available on case by case basis. Researchers have the opportunity to work with our and access the GeCIP network who are a community of world-leading experts in specific cancers and rare diseases.
Jurisdiction
Data Controller
Data Processor