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UK ME/CFS Biobank
Population Size
Not reported
Years
2012
Associated BioSamples
Peripheral blood cells
Plasma
...see more
Geographic coverage
United Kingdom
England
Lead time
Other
Summary
Collection of samples and data across the following diseases: Chronic fatigue syndrome
Documentation
Participants: Over 650 participants are included in the study, including ME/CFS participants diagnosed by a physician and compliant with CDC '94 (Fukuda) and Canadian Consensus Criteria (CCC), with case definition compliance available for four other commonly-used criteria. Healthy and MS matched controls are also available.
- Mild and Moderate ME/CFS
- Severe (Home-Bound) ME/CFS
- Multiple Sclerosis
- Healthy Controls Samples Available: Over 32,000 aliquots available.
- Whole Blood
- Serum
- Plasma
- RBCs
- PBMCs (Sodium Heparin and K2 EDTA)
- Blood for RNA Extraction (PaxGENE) Associated Data Available:
- Baseline Standard Laboratory Tests to exclude comorbidity causes of fatigue
- In-person clinical assessment data
- Detailed Symptoms Assessments
- Demographic information
- Standardised instruments of Fatigue Severity and Functional Impairment
Dataset type
Health and disease
Dataset sub-type
Not applicable
Keywords
UKCRC Tissue Directory, ME/CFS, UK, Chronic fatigue syndrome, Biobank
Provenance
Image contrast
Not stated
Biological sample availability
Peripheral blood cells,Plasma,RNA,Serum,Whole blood
Details
Publishing frequency
Other
Version
1.0.0
Modified
08/10/2024
Distribution release date
19/02/2019
Citation Requirements
In Progress
Coverage
Start date
01/01/2012
Time lag
Variable
Geographic coverage
United Kingdom, England
Minimum age range
15
Maximum age range
150
Accessibility
Language
en
Controlled vocabulary
LOCAL
Format
In Progress
Data Access Request
Dataset pipeline status
Not available
Access rights
Please contact the publisher using Contact Point details provided
Time to dataset access
Other
Access request cost
Not specified
Access method category
Varies based on project
Data Controller
London School of Hygiene & Tropical Medicine