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North West London Coordinate My Care (NWL CMC)

Population Size

19,056

People

Population Size statistic card

Years

2012

Years statistic card

Associated BioSamples

None/not available

Associated BioSamples statistic card

Geographic coverage

United Kingdom

England

...see more

Geographic coverage statistic card

Lead time

1-2 months

Lead time statistic card

Summary

The NWL CMC linked table is an innovative NHS service that builds medical care around the wishes of each patient. Patients registered with a NWL General Practice can create plans with their GP and share with healthcare professionals treating them.

Documentation

List of patients with CMC care plan (end of life care plan).

Dataset type

Health and disease

Dataset sub-type

Not applicable

Dataset population size

19056

Associated media

https://discover-now.co.uk/the-data/https://www.nwlondonics.nhs.uk/professionals/whole-systems-integrated-care-wsic/information-de-identified-users

Keywords

Observations

Observed Node

Disambiguating Description

Measured Value

Measured Property

Observation Date

Persons

19056

Count

08 Dec 2020

Provenance

Source of data extraction

EPR

Collection source setting

Other

Patient pathway description

This dataset covers patients across all pathway and information related to their CMC record including resuscitation details.

Image contrast

Not stated

Biological sample availability

None/not available

Structural Metadata

Details

Publishing frequency

Monthly

Version

3.0.0

Modified

08/10/2024

Distribution release date

05/05/2020

Citation Requirements

NHS NWL ICS;,;Discover-NOW

Coverage

Start date

24/07/2012

Time lag

1-2 months

Geographic coverage

United Kingdom, England, London, Brent, Ealing, Hammersmith and Fulham, Harrow, Hillingdon, Hounslow, Kensington and Chelsea, Westminster

Maximum age range

150

Follow-up

10 Years

Accessibility

Language

en

Controlled vocabulary

LOCAL

Format

Excel, SQL, Tableau, R

Data Access Request

Dataset pipeline status

Not available

Access rights

https://discover-now.co.uk/make-an-enquiry/

Time to dataset access

1-2 months

Access request cost

In Progress

Access method category

TRE/SDE

Access service description

Researchers will have access to a VDI environment with a specific username and password. The researchers will get access to the datasets that is present in the hub's catalogue and would be able to carry out their research within the safe haven. There are restrictions applied which prevents the researchers from taking data out of the safe haven, once the research/analysis is completed the admin team will need to be contacted for taking the analysis off the safe haven.

Jurisdiction

GB

Data use limitation

No restriction

Data use requirements

Collaboration required,Institution-specific restrictions,Project-specific restrictions,Time limit on use,User-specific restriction

Data Controller

Joint data controller model across North West London

Data Processor

North West London Integrated Care Board (NWL ICB) North East London Integrated Care Board (NEL ICB) North of England Commissioning Support Unit (NECS)

Dataset Types: Health and disease

Collection Sources: Other

Publications about this dataset

How an electronic health record became a real-world research resource: comparison between London's W...Bottle A, Cohen C, Lucas A, Saravanakumar K, Ul-Ha...

BMC medical informatics and decision making BMC medical informatics and decision making

Published - 2020