Bookmarks
North West London Coordinate My Care (NWL CMC)
Population Size
19,056
People
Years
2012
Associated BioSamples
None/not available
Geographic coverage
United Kingdom
England
...see more
Lead time
1-2 months
Summary
The NWL CMC linked table is an innovative NHS service that builds medical care around the wishes of each patient. Patients registered with a NWL General Practice can create plans with their GP and share with healthcare professionals treating them.
Documentation
List of patients with CMC care plan (end of life care plan).
Dataset type
Health and disease
Dataset sub-type
Not applicable
Dataset population size
19056
Keywords
CMC, Discover-NOW, Coordinate My Care, End of Life, Integrated Care, Pathway, Real World data, Linked longitundinal
Observations
Observed Node | Disambiguating Description | Measured Value | Measured Property | Observation Date |
|---|---|---|---|---|
Persons | 19056 | Count | 08 Dec 2020 |
Provenance
Source of data extraction
EPR
Collection source setting
Other
Patient pathway description
This dataset covers patients across all pathway and information related to their CMC record including resuscitation details.
Image contrast
Not stated
Biological sample availability
None/not available
Structural Metadata
Details
Publishing frequency
Monthly
Version
3.0.0
Modified
08/10/2024
Distribution release date
05/05/2020
Citation Requirements
NHS NWL ICS;,;Discover-NOW
Coverage
Start date
24/07/2012
Time lag
1-2 months
Geographic coverage
United Kingdom, England, London, Brent, Ealing, Hammersmith and Fulham, Harrow, Hillingdon, Hounslow, Kensington and Chelsea, Westminster
Maximum age range
150
Follow-up
10 Years
Accessibility
Language
en
Controlled vocabulary
LOCAL
Format
Excel, SQL, Tableau, R
Data Access Request
Dataset pipeline status
Not available
Access rights
Time to dataset access
1-2 months
Access request cost
In Progress
Access method category
TRE/SDE
Access service description
Researchers will have access to a VDI environment with a specific username and password. The researchers will get access to the datasets that is present in the hub's catalogue and would be able to carry out their research within the safe haven. There are restrictions applied which prevents the researchers from taking data out of the safe haven, once the research/analysis is completed the admin team will need to be contacted for taking the analysis off the safe haven.
Jurisdiction
GB
Data use limitation
No restriction
Data use requirements
Collaboration required,Institution-specific restrictions,Project-specific restrictions,Time limit on use,User-specific restriction
Data Controller
Joint data controller model across North West London
Data Processor
North West London Integrated Care Board (NWL ICB) North East London Integrated Care Board (NEL ICB) North of England Commissioning Support Unit (NECS)
Dataset Types: Health and disease
Collection Sources: Other
Publications about this dataset
How an electronic health record became a real-world research resource: comparison between London's W...Bottle A, Cohen C, Lucas A, Saravanakumar K, Ul-Ha...
BMC medical informatics and decision making BMC medical informatics and decision making
Published - 2020