Dataset - Health Data Research Gateway

Bookmarks

North West London Patient Index (NWL PI)

Population Size

2,684,730

People

Population Size statistic card

Years

2015

Years statistic card

Associated BioSamples

None/not available

Associated BioSamples statistic card

Geographic coverage

United Kingdom

England

Geographic coverage statistic card

Lead time

1-2 months

Lead time statistic card

Dataset

Analysis Scripts & Software

Data Uses / Research Projects

Publications using this dataset (external search)

Collection(s)

Data Custodian

Summary

The NWL Patient Index linked tables holds demographics for patients registered to a practices within NWL such as patient age, gender, first language and ethnicity. Lower Super Output Area and Index of Multiple Deprivation Rank is also included.

Documentation

When a patient or service user is treated or cared for, information is collected which supports their treatment. This information is also useful to commissioners and providers of NHS-funded care for 'secondary' purposes - purposes other than direct or 'primary' clinical care - such as:

Healthcare planning
Commissioning of services
National Tariff reimbursement
Development of national policy

SUS is a secure data warehouse that stores this patient-level information in line with national standards and applies complex derivations which support national tariff policy and secondary analysis.

Access to SUS is managed using Role-Based Access Control (RBAC) which grants appropriate access levels to identifiable, anonymised or pseudonymised data based on the users job role.

Dataset type

Health and disease

Dataset sub-type

Not applicable

Dataset population size

2684730

Associated media

https://discover-now.co.uk/the-data/https://www.nwlondonics.nhs.uk/professionals/whole-systems-integrated-care-wsic/information-de-identified-users

Keywords

Observations

Observed Node	Disambiguating Description	Measured Value	Measured Property	Observation Date
Persons	Population	2684730	Count	08 Dec 2020
Persons	Registered population	2743697	count	20 Oct 2022

Provenance

Source of data extraction

EPR

Collection source setting

Primary care - Clinic

Patient pathway description

This is the patient index table generated from primary care registrations. Each patient will have an unique patient key that can be used to link to all other metadata available through Discover-NOW hub

Image contrast

Not stated

Biological sample availability

None/not available

Structural Metadata

Details

Publishing frequency

Monthly

Version

6.0.0

Modified

08/10/2024

Distribution release date

18/12/2019

Citation Requirements

NHS NWL ICS

Coverage

Start date

01/01/2015

Time lag

2-4 weeks

Geographic coverage

United Kingdom, England, London, Brent, Ealing, Hammersmith and Fulham, Harrow, Hillingdon, Hounslow, Kensington and Chelsea, Westminster

Maximum age range

150

Follow-up

10 Years

Accessibility

Language

Controlled vocabulary

OTHER

Format

Excel, SQL, Tableau, R

Data Access Request

Dataset pipeline status

Not available

Access rights

https://discover-now.co.uk/make-an-enquiry/

Time to dataset access

1-2 months

Access request cost

In Progress

Access method category

TRE/SDE

Access service description

Researchers will have access to a VDI environment with a specific username and password. The researchers will get access to the datasets that is present in the hub's catalogue and would be able to carry out their research within the safe haven. There are restrictions applied which prevents the researchers from taking data out of the safe haven, once the research/analysis is completed the admin team will need to be contacted for taking the analysis off the safe haven.

Jurisdiction

Data use limitation

No restriction

Data use requirements

Collaboration required,Institution-specific restrictions,Project-specific restrictions,Time limit on use,User-specific restriction

Data Controller

Joint data controller model across North West London

Data Processor

North West London Integrated Care Board (NWL ICB) North East London Integrated Care Board (NEL ICB) North of England Commissioning Support Unit (NECS)