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National Early Inflammatory Arthritis Audit - patient survey

Population Size

8,702

People

Population Size statistic card

Years

2014

Years statistic card

Associated BioSamples

None/not available

Associated BioSamples statistic card

Geographic coverage

United Kingdom

England

Geographic coverage statistic card

Lead time

Variable

Lead time statistic card

Summary

Continuously ascertained collection for all patients in England and Wales presenting to secondary rheumatology services over age 16 years with confirmed inflammatory arthritis. Measures at diagnosis, 3 months later and 1 year after diagnosis.

Documentation

Continuously ascertained collection of patient reported symptoms, quality of life and employment for all patients in England and Wales presenting to secondary rheumatology services over the age of 16 years with confirmed inflammatory arthritis. Measures are included at three survey times: at diagnosis, 3 months later and 1 year after diagnosis.

Dataset type

Health and disease

Dataset sub-type

Musculoskeletal

Dataset population size

8702

Associated media

https://www.hqip.org.uk/a-z-of-nca/rheumatoid-early-inflammatory-arthritis-audit/#.YL8XN_lKiUk

Keywords

Observations

Observed Node

Disambiguating Description

Measured Value

Measured Property

Observation Date

Persons

number of patients in the dataset

8702

Count

01 Jan 2021

Provenance

Purpose of dataset collection

Audit

Source of data extraction

Electronic survey

Collection source setting

Clinic, Home

Patient pathway description

patients with suspected or confirmed early inflammatory arthritis

Image contrast

Not stated

Biological sample availability

None/not available

Structural Metadata

Details

Publishing frequency

Continuous

Version

5.0.0

Modified

08/10/2024

Citation Requirements

Data has been provided by the Healthcare Quality Improvement Partnership from the National Early Inflammatory Arthritis Audit

Coverage

Start date

01/02/2014

Time lag

Variable

Geographic coverage

United Kingdom, England, Wales

Minimum age range

16

Maximum age range

150

Follow-up

6 - 12 Months

Accessibility

Language

en

Controlled vocabulary

LOCAL

Format

CSV

Data Access Request

Dataset pipeline status

Not available

Access rights

https://www.hqip.org.uk/national-programmes/accessing-ncapop-data, https://arthritisaudit.org.uk/filesuploaded/data%20access%20process%20-%20november%202018.pdf

Time to dataset access

Variable

Access request cost

https://www.hqip.org.uk/national-programmes/accessing-ncapop-data, https://arthritisaudit.org.uk/filesuploaded/data%20access%20process%20-%20november%202018.pdf

Access method category

Varies based on project

Jurisdiction

GB-EAW

Data use limitation

No restriction

Data use requirements

Project-specific restrictions

Data Controller

Healthcare Quality Improvement Partnership jointly with NHS England

Data Processor

Kings College London

Dataset Types: Health and disease

Dataset Sub-types: Musculoskeletal

Collection Sources: Clinic, Home

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