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Trusted Research Environments for CVD-COVID-UK / COVID-IMPACT

Population Size

65,000,000

People

Years

1990

Associated BioSamples

None/not available

Geographic coverage

United Kingdom

Lead time

1-2 months

Summary

Linkable health datasets in respective TREs in England, Scotland and Wales, accessible to approved researchers who are members of the BHF Data Science Centre's CVD-COVID-UK consortium, and for COVID-IMPACT / National Core Studies projects (England only).

Documentation

CVD-COVID-UK, co-ordinated by the British Heart Foundation (BHF) Data Science Centre, is one of the NIHR-BHF Cardiovascular Partnership’s National Flagship Projects.

It aims to understand the relationship between COVID-19 and cardiovascular diseases through analyses of de-identified, pseudonymised, linked, nationally collated health datasets across the four nations of the UK.

The consortium has over 400 members across more than 50 institutions including data custodians, data scientists and clinicians, all of whom have signed up to an agreed set of principles with an inclusive, open and transparent ethos.

Approved researchers access data within secure trusted/secure research environments (TREs/SDEs) provided by NHS England (England), the National Safe Haven (Scotland), the SAIL Databank (Wales) and the Honest Broker Service (Northern Ireland).

Linkable datasets include those from primary and secondary care, COVID lab tests and vaccinations, deaths, critical care, prescribing/dispensing, cardiovascular and stroke audits, maternity services and mental health.

The centre has gained approval to broaden the scope of the programme to all COVID-related research (in NHS England’s SDE for England only). This is known as COVID-IMPACT and it will help to support research projects from the wider community, including for the National Core Studies.

A dashboard of datasets available in each nation’s TRE can be found here: https://bhfdatasciencecentre.org/areas/cvd-covid-uk-covid-impact/

Note:

  • The demographic information/counts are approximate and rounded. Figures should not be used for anything other than a rough indication of size of the grouping.
  • Counts for people between 5-24 years have been approximated into these bins based on the age bins in the COALESCE study. https://www.hdruk.ac.uk/projects/coalesce/
  • All count of people above the age of 85 years are included in the age bin 85-90 years.
Dataset type
Health and disease, Registry
Dataset sub-type
Cardiovascular, Mental health, Maternity and neonatology, Vaccines, Births and deaths
Dataset population size
65000000

Keywords

BHF, CVD-COVID-UK, BHF DSC, BHF Data Science Centre, TRE, Trusted Research Environment, CVD, COVID, COVID-19, Coronavirus, Linked, LINKABLE, Cardiovascular, England, Scotland, Wales, GDPPR, HES, SUS, Dataset, SGSS, SSNAP, Death register, EHR, CHESS, NHSD, NHS Digital, SAIL, Safe Haven, ICNARC, Heart, Heart disease, Myocardial, Stroke, Vascular, venous, Dispensing, Prescribing, Primary Care, Secondary Care, SARS-CoV-2, SICSAG, SICSAG, SMR00, SMR01, ECOSS, APC, Outpatients, MINAP, PCI, NICOR, PEDW, ADBE, ADDD, ADDE, CCDS, CENW, CTTP, CARE, CDDS, CVSP, CVVD, EDDD, EDDS, GPCD, HQIP, ICCD, ICNC, MIDS, NICO, NVR, NHFA, NACSA, NACRM, NCHDA, OPDW, OPRD, PATD, RTTD, SDEC, TAVI, WASD, WDDS, WDSD, WLGP, WRRS, LIMS, NIMS, PILLAR 1, PILLAR 2, PILLAR 3, VACCINATION, Vaccination, Vaccine, vaccine, A&E, Admitted Patient Care, COVID-19 Hospitalisation in England Surveillance System, Hospital episode statistics, ELECTRONIC HEALTH RECORDS, Cardiac, Cardiovascular Disease, co-morbidities, multi-morbidity, multimorbidity, Research, arterial, Ischaemia, Ischemic heart disease, COVID-IMPACT, National Core Study, NCS

Observations

Observed Node
Disambiguating Description
Measured Value
Measured Property
Observation Date

Persons

Multiple datasets in each nation's TRE with a population size of up to 57M in England (NHSE), 5.5M in Scotland (Safe Haven) and 3.2M in Wales (SAIL). Some datasets measure events and will have a significantly larger number of records.

65000000

Count

01 Jan 1990

Provenance

Purpose of dataset collection
Study
Collection source setting
Clinic, Primary care - Clinic, Secondary care - Accident and Emergency, Secondary care - Outpatients, Secondary care - In-patients, Community, Prescribing - Community pharmacy
Patient pathway description
Primary care, secondary care, COVID testing and vaccinations, deaths, ITU/HDU admissions, prescribing/dispensing, cardiovascular audits (NICOR), stroke audits (SSNAP), maternity services, mental health.
Image contrast
Not stated
Biological sample availability
None/not available

Structural Metadata

Details

Publishing frequency
Monthly
Version
7.0.0
Modified

08/10/2024

Citation Requirements
NHS England, SAIL Databank, Scottish National Safe Haven

Coverage

Start date

01/01/1990

Time lag
Variable
Geographic coverage
United Kingdom
Maximum age range
150
Follow-up
Other

Accessibility

Language
en
Controlled vocabulary
OPCS4, READ, SNOMED CT, DM+D, ICD10, OTHER, NHS NATIONAL CODES, NHS WALES NATIONAL CODES, LOCAL, ICD9, NHS SCOTLAND NATIONAL CODES, ODS
Format
SQL database table

Data Access Request

Dataset pipeline status
Not available
Time to dataset access
1-2 months
Access method category
TRE/SDE
Access service description
Data is accessed within the respective TREs under the arrangements in place with the BHF Data Science Centre for CVD-COVID-UK / COVID-IMPACT
Jurisdiction
GB-ENG, GB-SCT, GB-WLS
Data use limitation
Research-specific restrictions
Data use requirements
Collaboration required,Institution-specific restrictions,Project-specific restrictions,Publication required,Time limit on use,User-specific restriction
Data Controller
NHS England, Public Health Scotland/National Records Scotland, SAIL Databank
Data Processor
NHS England, Public Health Scotland, SAIL Databank

Demographics

Dataset Types: Health and disease, Registry

Dataset Sub-types: Cardiovascular, Mental health, Maternity and neonatology, Vaccines, Births and deaths


Collection Sources: Clinic, Primary care - Clinic, Secondary care - Accident and Emergency, Secondary care - Outpatients, Secondary care - In-patients, Community, Prescribing - Community pharmacy

Relationships:

Publications about this dataset

Linked electronic health records for research on a nationwide cohort of more than 54 million people ...Wood A, Denholm R, Hollings S, Cooper J, Ip S, Wal...

BMJ (Clinical research ed.)

Published - 2021