Bookmarks
Quality of Life of Cancer Survivors: Pilot Patient Reported Outcomes(Aurum)
Population Size
3,255,865
People
Years
2006 - 2010
Associated BioSamples
None/not available
Geographic coverage
United Kingdom
England
Lead time
Not applicable
Summary
CPRD Aurum linked Quality of Life of Cancer Survivors pilot survey (QOLP) data from survivors of breast, colorectal, prostate cancer or non-Hodgkin’s lymphoma, diagnosed 2006-2010. Note, these data are not routinely available.
Documentation
CPRD Aurum linked Quality of Life of Cancer Survivors in England: Pilot Survey (2011) was commissioned by the Department of Health as part of the National Cancer Survivorship Initiative (NCSI). The survey was conducted by Quality Health in conjunction with three cancer registries in England. The survey measured the overall quality of life of representative samples of cancer survivors with breast, colorectal cancer, prostate cancer and non-Hodgkin’s lymphoma (NHL) diagnosed during July 2006 - July 2010. Quality of life was assessed at four different time points after diagnosis at approximately one, two, three or five years. As this was a pilot survey, numbers are small and data governance issues will need to be carefully considered on a study by study basis. Outcome items in the survey are made up of Euroqol 5-level (EQ-5D), Functional Assessment of Cancer Therapy (FACT), and Social Difficulties Inventory (SDI) items.
Dataset type
Health and disease
Dataset sub-type
Not applicable
Dataset population size
3255865
Associated media
Keywords
Cancer Survivor, Quality of Life
Observations
Observed Node | Disambiguating Description | Measured Value | Measured Property | Observation Date |
|---|---|---|---|---|
Persons | Number of CPRD Aurum patients matched to a single cancer identifier | 3255865 | Count | 06 Sep 2021 |
Provenance
Source of data extraction
Electronic survey
Collection source setting
Secondary care - In-patients, Other
Patient pathway description
Cancer registration data are collected from a range of health care provider systems and other services.
Image contrast
Not stated
Biological sample availability
None/not available
Structural Metadata
Details
Publishing frequency
Quarterly
Version
8.0.0
Modified
08/10/2024
Distribution release date
11/12/2020
Citation Requirements
Public Health England (PHE) via the National Cancer Registration and Analysis Service (NCRAS)
Coverage
Start date
07/01/2006
End date
31/07/2010
Time lag
More than 6 months
Geographic coverage
United Kingdom, England
Maximum age range
115
Follow-up
Other
Accessibility
Language
en
Controlled vocabulary
OTHER
Format
Tab delimited text
Data Access Request
Dataset pipeline status
Not available
Access rights
Time to dataset access
Not applicable
Access request cost
Access method category
Varies based on project
Access service description
Access to CPRD data, including UK Primary Care Data, and linked data such as Hospital Episode Statistics, is subject to protocol approval via CPRD’s Research Data Governance (RDG) Process. Independent scientific and patient advice is provided by Expert Review Committees (ERCs) and the Central Advisory Committee (CAC): https://www.cprd.com/research-applications
Jurisdiction
GB-ENG
Data use limitation
General research use,No linkage,Research-specific restrictions,Research use only
Data use requirements
Geographical restrictions,Institution-specific restrictions,Project-specific restrictions,Time limit on use,User-specific restriction
Data Controller
Clinical Practice Research Datalink (CPRD)
Data Processor
CPRD