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Studies Supported by NIHR CRN, ICD10 Coded, with Summary Site Recruitment Data

Population Size

Not reported

Years

2008

Associated BioSamples

None/not available

Geographic coverage

United Kingdom

Lead time

Not applicable

Summary

All non-commercial studies supported by NIHR CRN to date with HRCS and ICD10 codings where present. For each study, there is a list of all NHS Trusts and GP Practices which have recruited participants for studies and the total number of participants/month.

Documentation

This dataset comprises summary records of all non-commercial clinical research projects which have been supported by the National Institute for Research Clinical Research Network [CRN]. The majority of these studies have been coded according to the disease(s) or condition(s) they are investigating. This classification has been done by a clinical coder using ICD10 and HRCS* codes.

Accompanying this information is a list of all the NHS Trusts and GP Practices which have recruited participants for these studies with the number of participants recruited each month. The Trusts and GP Practices are identified by name and ODS Code.

*Studies receive CRN support through a formal process based on criteria set by DHSC (https://www.nihr.ac.uk/documents/eligibility-for-nihr-clinical-research-network-support/23746). For the purposes of this extract it includes all studies added to the NHR CRN Portfolio since 1st January 2008. **UKCRC Health Research Classification System Health Categories.

Dataset type
Health and disease
Dataset sub-type
Not applicable

Keywords

Trials, Studies, NIHR, Clinical Research, ICD10, Research Participation, HRCS, NHS Trust, GP Practice, NIHR CRN

Observations

Observed Node
Disambiguating Description
Measured Value
Measured Property
Observation Date

Events

The data set is concerned with the number of consents to join clinical research which have been taken. Hence the observed node in this case is the consent event. Measured values will increase over time from the baseline recorded here by c. 60k/month

7883974

Count

04 May 2021

Provenance

Purpose of dataset collection
Administrative
Source of data extraction
Other
Collection source setting
Other
Patient pathway description
This dataset is not representative of the patient pathway
Image contrast
Not stated
Biological sample availability
None/not available

Structural Metadata

Details

Publishing frequency
Irregular
Version
1.0.0
Modified

08/10/2024

Citation Requirements
National Institute for Health Research Research Clinical Research Network

Coverage

Start date

01/01/2008

Time lag
Less than 1 week
Geographic coverage
United Kingdom
Maximum age range
150
Follow-up
Other

Accessibility

Language
en
Controlled vocabulary
ODS, ICD10, LOCAL, OTHER
Format
Comma Separated Values

Data Access Request

Dataset pipeline status
Not available
Access rights
https://sites.google.com/nihr.ac.uk/nihrcrndatasharing/home
Time to dataset access
Not applicable
Access request cost
None
Access method category
Varies based on project
Access service description

At present, there is no data access environment, but there is a process for requesting a copy of the dataset. Please use this link: https://sites.google.com/nihr.ac.uk/nihrcrndatasharing/home to complete a data access request.

On approval of an application for access a file containing the data will be sent by email to the applicant.

Jurisdiction
GB-GB
Data use limitation
General research use
Data use requirements
User-specific restriction,Publication required
Data Controller
The Department of Health and Social Care
Data Processor
National Institute for Health Research Research Clinical Research Network

Dataset Types: Health and disease

Collection Sources: Other