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UK Renal Registry - COVID-19 dataset

Population Size

20,800

People

Population Size statistic card

Years

2020

Years statistic card

Associated BioSamples

None/not available

Associated BioSamples statistic card

Geographic coverage

England Wales Northern Ireland

Geographic coverage statistic card

Lead time

2-6 months

Lead time statistic card

Summary

Patient-level data for adults and children with CKD or adults with an AKI on dialysis who are under the care of NHS hospital renal centres in England, Northern Ireland and Wales and who have a positive laboratory test for SARS-CoV-2.

Documentation

The dataset contains patient-level data for adults and children with chronic kidney disease (CKD) or adults with an acute kidney injury (AKI) on dialysis who are under the care of NHS hospital renal centres in England, Northern Ireland and Wales and who have a positive laboratory test for SARS-CoV-2. The data were collected weekly, but this is now moving to monthly, and include patient identifiable information and limited socio-demographic and clinical data. Public Health Scotland submits aggregate data to the UKRR on a monthly basis. Data collection commenced in March 2020 and coverage of renal centres is very good (see COVID-19 surveillance reports here: https://ukkidney.org/audit-research/publications-presentations/report/covid-19-surveillance-reports).

Dataset type

Health and disease

Dataset sub-type

Not applicable

Dataset population size

20800

Associated media

https://ukkidney.org/audit-research/publications-presentations/report/covid-19-surveillance-reports https://ukkidney.org/audit-research/data-permissions/data/ukrr-covid-19-dataset

Keywords

Observations

Observed Node

Disambiguating Description

Measured Value

Measured Property

Observation Date

Persons

Since March 2020, c. 20,800 patients with kidney disease who receive treatment from a renal centre in England, Northern Ireland and Wales have had a positive laboratory test for SARS-CoV-2.

20800

Count

02 Mar 2022

Provenance

Purpose of dataset collection

Audit, Disease registry, Care, Study

Source of data extraction

EPR, Electronic survey

Collection source setting

Clinic, Secondary care - Outpatients, Secondary care - In-patients

Patient pathway description

The dataset includes all patients with a positive laboratory test for SARS-COV-2 that are reported to the UK Renal Registry by renal centres in England, Northern Ireland and Wales.

Image contrast

Not stated

Biological sample availability

None/not available

Structural Metadata

Details

Publishing frequency

Monthly

Version

1.0.0

Modified

08/10/2024

Distribution release date

09/03/2022

Citation Requirements

UK Renal Registry, UK Kidney Association

Coverage

Start date

02/03/2020

Time lag

2-4 weeks

Geographic coverage

England Wales Northern Ireland

Maximum age range

150

Follow-up

0 - 6 Months

Accessibility

Language

en

Controlled vocabulary

LOCAL

Format

csv or xlsx or sas7bdat

Data Access Request

Dataset pipeline status

Available

Access rights

https://renal.org/audit-research/how-access-data/ukrr-data/apply-access-ukrr-data

Time to dataset access

2-6 months

Access request cost

Charges may apply for new aggregate data and extracts of pseudonymous patient level data. The charges are to recover the costs of managing the application process and preparing extracts of data. The costs depend on the level of service required from the UKRR and whether this is limited to a simple extract of data, or requires additional input such as methodological or statistical support. The UKRR can advise on costs once the expression of interest is received and applicants may also be requested to complete a costing form.

Access method category

Direct access

Access service description

Data are released to researchers who have successfully gone through the UKRR's data application process. Prior to any data sharing with successful applicants, a fixed term data sharing agreement (DSA) is drawn up between the UK Kidney Association and the recipient. This specifies the scope of the analyses permitted, the data items to be shared, the frequency of the data sharing, the names of the researchers and the time limit beyond which data must be destroyed.

Jurisdiction

GB-GB

Data use limitation

General research use

Data use requirements

Project-specific restrictions,Ethics approval required,Geographical restrictions,Time limit on use,Not for profit use,User-specific restriction,Institution-specific restrictions

Data Controller

The UK Kidney Association

Investigations

https://ukkidney.org/audit-research/projects/ukrr

Enrichment and Linkage

Investigations

https://ukkidney.org/audit-research/projects/ukrr

Dataset Types: Health and disease

Collection Sources: Clinic, Secondary care - Outpatients, Secondary care - In-patients

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