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UK Renal Registry - COVID-19 dataset
Population Size
20,800
People
Years
2020
Associated BioSamples
None/not available
Geographic coverage
England Wales Northern Ireland
Lead time
2-6 months
Summary
Patient-level data for adults and children with CKD or adults with an AKI on dialysis who are under the care of NHS hospital renal centres in England, Northern Ireland and Wales and who have a positive laboratory test for SARS-CoV-2.
Documentation
The dataset contains patient-level data for adults and children with chronic kidney disease (CKD) or adults with an acute kidney injury (AKI) on dialysis who are under the care of NHS hospital renal centres in England, Northern Ireland and Wales and who have a positive laboratory test for SARS-CoV-2. The data were collected weekly, but this is now moving to monthly, and include patient identifiable information and limited socio-demographic and clinical data. Public Health Scotland submits aggregate data to the UKRR on a monthly basis. Data collection commenced in March 2020 and coverage of renal centres is very good (see COVID-19 surveillance reports here: https://ukkidney.org/audit-research/publications-presentations/report/covid-19-surveillance-reports).
Dataset type
Health and disease
Dataset sub-type
Not applicable
Dataset population size
20800
Keywords
UK Renal Registry, Chronic kidney disease (disorder), Acute kidney injury, CKD, AKI, End-stage kidney disease, ESKD, Kidney failure, kidney replacement therapy, KRT, RRT, Renal replacement therapy, Renal, Kidney, Transplant, Dialysis, COVID-19, SARS-CoV-2
Observations
Observed Node | Disambiguating Description | Measured Value | Measured Property | Observation Date |
|---|---|---|---|---|
Persons | Since March 2020, c. 20,800 patients with kidney disease who receive treatment from a renal centre in England, Northern Ireland and Wales have had a positive laboratory test for SARS-CoV-2. | 20800 | Count | 02 Mar 2022 |
Provenance
Purpose of dataset collection
Audit, Disease registry, Care, Study
Source of data extraction
EPR, Electronic survey
Collection source setting
Clinic, Secondary care - Outpatients, Secondary care - In-patients
Patient pathway description
The dataset includes all patients with a positive laboratory test for SARS-COV-2 that are reported to the UK Renal Registry by renal centres in England, Northern Ireland and Wales.
Image contrast
Not stated
Biological sample availability
None/not available
Structural Metadata
Details
Publishing frequency
Monthly
Version
1.0.0
Modified
08/10/2024
Distribution release date
09/03/2022
Citation Requirements
UK Renal Registry, UK Kidney Association
Coverage
Start date
02/03/2020
Time lag
2-4 weeks
Geographic coverage
England Wales Northern Ireland
Maximum age range
150
Follow-up
0 - 6 Months
Accessibility
Language
en
Controlled vocabulary
LOCAL
Format
csv or xlsx or sas7bdat
Data Access Request
Dataset pipeline status
Available
Time to dataset access
2-6 months
Access request cost
Charges may apply for new aggregate data and extracts of pseudonymous patient level data. The charges are to recover the costs of managing the application process and preparing extracts of data. The costs depend on the level of service required from the UKRR and whether this is limited to a simple extract of data, or requires additional input such as methodological or statistical support. The UKRR can advise on costs once the expression of interest is received and applicants may also be requested to complete a costing form.
Access method category
Direct access
Access service description
Data are released to researchers who have successfully gone through the UKRR's data application process. Prior to any data sharing with successful applicants, a fixed term data sharing agreement (DSA) is drawn up between the UK Kidney Association and the recipient. This specifies the scope of the analyses permitted, the data items to be shared, the frequency of the data sharing, the names of the researchers and the time limit beyond which data must be destroyed.
Jurisdiction
GB-GB
Data use limitation
General research use
Data use requirements
Project-specific restrictions,Ethics approval required,Geographical restrictions,Time limit on use,Not for profit use,User-specific restriction,Institution-specific restrictions
Data Controller
The UK Kidney Association
Investigations