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2019 UK Parkinson's Audit - Elderly care and neurology

Population Size

6,256

People

Years

2019 - 2019

Associated BioSamples

None/not available

Geographic coverage

United Kingdom

Lead time

Not applicable

Summary

The dataset contains data provided by specialist elderly care and neurology services on the configuration of their service (service audit) and on the care provided to individual patients in connection with their Parkinson's (patient audit)

Documentation

The UK Parkinson’s Audit assesses care provided to people with Parkinson's by a range of clinical specialities against evidence-based guidelines.

The audit of patient management covers elderly care and neurology services and the routine care they provide to people in connection with their Parkinson’s. Services submit data on their model of service delivery and the assessments which are routinely carried out (service audit) and data on the care provided over the last 12 months to at least twenty of their consecutive patients seen during the five-month data collection period (patient audit). No patient identifiers are collected.

The audit is open to services across the UK which see patients for the routine review of their Parkinson’s - secondary care (non-acute) and community services. A service is self-defined - for example an individual consultant, a consultant and a specialist nurse, a group of consultants seeing the same cohort of patients, or a specialist nurse working in a community setting. There can therefore be more than one service taking part in any Trust or hospital.

The 2019 audit includes data from 266 elderly care and neurology services covering 6256 patient cases.

The data is available by UK Parkinson’s Excellence Network region. The UK Parkinson's Excellence Network is a network of health and social care professionals working to improve Parkinson's services administered with support from Parkinson’s UK. Professionals can join the Network to access resources, increase their knowledge of Parkinson's and collaborate with people affected by Parkinson's to transform health and care services.

The audit is the recognised quality improvement tool for the Excellence Network, providing an important baseline against which progress can be measured, informing national, regional and local service improvement priorities and plans to achieve better services for people living with the condition.

The regions are:

England: Cheshire and Merseyside East of England East Midlands Greater Manchester, Lancashire and South Cumbria London North East and Cumbria Peninsula South East Coast South West Thames Valley Wessex West Midlands Yorkshire and Humber

Scotland: North Scotland South and East Scotland West Scotland

Northern Ireland: Northern Ireland

Wales: North and Mid Wales South Wales

Other: Guernsey Isle of Man Republic of Ireland

Information about the regions can be found here: https://www.parkinsons.org.uk/professionals/local-parkinsons-excellence-network-groups

Dataset type
Health and disease
Dataset sub-type
Not applicable
Dataset population size
6256

Keywords

Secondary care, geriatrician, neurologist, Parkinson's specialist nurse, patient management

Observations

Observed Node
Disambiguating Description
Measured Value
Measured Property
Observation Date

Persons

6256 patient cases are included from 266 elderly care and neurology services

6256

Count

30 Sep 2019

Provenance

Purpose of dataset collection
Audit
Source of data extraction
Electronic survey
Collection source setting
Services
Patient pathway description
Single specialty - either elderly care or neurology (non acute), secondary care and community services
Image contrast
Not stated
Biological sample availability
None/not available

Structural Metadata

Details

Publishing frequency
Other
Version
1.0.0
Modified

08/10/2024

Distribution release date

31/01/2020

Citation Requirements
Parkinson's UK

Coverage

Start date

01/05/2019

End date

30/09/2019

Time lag
Not applicable
Geographic coverage
United Kingdom
Minimum age range
20
Maximum age range
99
Follow-up
6 - 12 Months

Accessibility

Language
en
Controlled vocabulary
LOCAL
Format
Text

Data Access Request

Dataset pipeline status
Not available
Time to dataset access
Not applicable
Access method category
Varies based on project
Access service description
The audit team at Parkinson's UK will respond to all requests for access to this data within 5 working days.
Jurisdiction
GB-GB
Data use limitation
General research use
Data Controller
Parkinson's UK

Dataset Types: Health and disease


Collection Sources: Services