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South East Scotland Cancer Database - Core Oncology Dataset
Population Size
163,788
People
Years
1974
Associated BioSamples
None/not available
Geographic coverage
United Kingdom
Scotland
...see more
Lead time
2-4 weeks
Summary
The oncology database was established in 2019 building on 40+ years of data collection across the region of the South East Scotland Cancer Network. The database holds data on diagnosis, treatment and outcomes of patients undergoing care within the region.
Documentation
SESCD oncology data is recorded and curated by a dedicated team of clinical coders using paper-based patient case notes, electronic patient records, Scottish morbidity registers, and secondary healthcare databases. In addition, there are a number of automatic feeds from various national, regional and bespoke databases and EPRs which are quality checked by the coding team. Clinical expertise is provided by a dedicated team of clinical and research professionals.
Dataset type
Health and disease
Dataset sub-type
Not applicable
Dataset population size
163788
Associated media
Keywords
Cancer, Oncology, Tumour, Metastatic Disease, Malignancy, Neoplasm, Invasive Disease, Cancer Treatment, Radiotherapy, Chemocare, Systematic Anti-Cancer Therapy, Edinburgh Cancer Informatics, Cancer Research UK, Edinburgh Cancer Centre, University of Edinburgh, Institute of Genetics and Cancer, IGC
Observations
Observed Node | Disambiguating Description | Measured Value | Measured Property | Observation Date |
|---|---|---|---|---|
Persons | Cancer patients in the South East of Scotland | 163788 | Count | 24 Aug 2022 |
Provenance
Collection source setting
Clinic, Secondary care - Outpatients, Secondary care - In-patients, Services, Prescribing - Community pharmacy, Other
Patient pathway description
Integrated care record covering the whole cancer patient pathway from initial diagnosis to death.
Image contrast
Not stated
Biological sample availability
None/not available
Details
Publishing frequency
Continuous
Version
1.0.0
Modified
08/10/2024
Citation Requirements
NHS Lothian
Coverage
Start date
01/01/1974
Time lag
Variable
Geographic coverage
United Kingdom, Scotland, City of Edinburgh, East Lothian, Midlothian, West Lothian, Dumfries and Galloway, Scottish Borders, Fife
Maximum age range
150
Follow-up
Continuous
Accessibility
Language
en
Controlled vocabulary
LOCAL, OPCS4, ICD10, ICD10CM, ICDO3
Format
application/sql, text/csv
Data Access Request
Dataset pipeline status
Not available
Access rights
Time to dataset access
2-4 weeks
Access request cost
Available on request
Access method category
Direct access
Access service description
Researchers define their cohort and time period and select from a list of available data variables. Analysts will retrieve the data and make it available as an Excel file.
Jurisdiction
GB-SCT
Data use limitation
Project-specific restrictions,Research-specific restrictions
Data use requirements
Project-specific restrictions,Disclosure control
Data Controller
NHS Lothian
Data Processor
NHS Lothian