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South East Scotland Cancer Database - Core Oncology Dataset

Population Size

163,788

People

Population Size statistic card

Years

1974

Years statistic card

Associated BioSamples

None/not available

Associated BioSamples statistic card

Geographic coverage

United Kingdom

Scotland

...see more

Geographic coverage statistic card

Lead time

2-4 weeks

Lead time statistic card

Summary

The oncology database was established in 2019 building on 40+ years of data collection across the region of the South East Scotland Cancer Network. The database holds data on diagnosis, treatment and outcomes of patients undergoing care within the region.

Documentation

SESCD oncology data is recorded and curated by a dedicated team of clinical coders using paper-based patient case notes, electronic patient records, Scottish morbidity registers, and secondary healthcare databases. In addition, there are a number of automatic feeds from various national, regional and bespoke databases and EPRs which are quality checked by the coding team. Clinical expertise is provided by a dedicated team of clinical and research professionals.

Dataset type

Health and disease

Dataset sub-type

Not applicable

Dataset population size

163788

Associated media

https://cancer-data.ecrc.ed.ac.uk/

Keywords

Observations

Observed Node

Disambiguating Description

Measured Value

Measured Property

Observation Date

Persons

Cancer patients in the South East of Scotland

163788

Count

24 Aug 2022

Provenance

Collection source setting

Clinic, Secondary care - Outpatients, Secondary care - In-patients, Services, Prescribing - Community pharmacy, Other

Patient pathway description

Integrated care record covering the whole cancer patient pathway from initial diagnosis to death.

Image contrast

Not stated

Biological sample availability

None/not available

Details

Publishing frequency

Continuous

Version

1.0.0

Modified

08/10/2024

Citation Requirements

NHS Lothian

Coverage

Start date

01/01/1974

Time lag

Variable

Geographic coverage

United Kingdom, Scotland, City of Edinburgh, East Lothian, Midlothian, West Lothian, Dumfries and Galloway, Scottish Borders, Fife

Maximum age range

150

Follow-up

Continuous

Accessibility

Language

en

Controlled vocabulary

LOCAL, OPCS4, ICD10, ICD10CM, ICDO3

Format

application/sql, text/csv

Data Access Request

Dataset pipeline status

Not available

Access rights

https://www.wiki.ed.ac.uk/display/CAN/Governance

Time to dataset access

2-4 weeks

Access request cost

Available on request

Access method category

Direct access

Access service description

Researchers define their cohort and time period and select from a list of available data variables. Analysts will retrieve the data and make it available as an Excel file.

Jurisdiction

GB-SCT

Data use limitation

Project-specific restrictions,Research-specific restrictions

Data use requirements

Project-specific restrictions,Disclosure control

Data Controller

NHS Lothian

Data Processor

NHS Lothian

Dataset Types: Health and disease

Collection Sources: Clinic, Secondary care - Outpatients, Secondary care - In-patients, Services, Prescribing - Community pharmacy, Other

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