HDR Gateway logo
HDR Gateway logo

Bookmarks

DataLoch Respiratory

Population Size

177,700

People

Years

2004

Associated BioSamples

None/not available

Geographic coverage

United Kingdom

Scotland

...see more

Lead time

Variable

Summary

A database of South-East Scotland residents diagnosed with Asthma, Chronic Obstructive Pulmonary Disease, Interstitial Lung Disease, Cystic Fibrosis or Wheeze containing research-ready data on demographics, diagnoses, events, measurements and medications.

Documentation

DataLoch has collaborated with the BREATHE Health Data Research Hub and others at Health Data Research UK (HDRUK) to create a respiratory-related database of South-East Scotland residents (NHS Lothian) with chronic respiratory conditions, specifically Asthma, Chronic Obstructive Pulmonary Disease (COPD) and Interstitial Lung Disease (ILD). DataLoch's respiratory registry is one of three related registries alongside others in England (Clinical Practice Research Datalink (CPRD) Aurum) and Wales (Secure Anonymised Information Linkage Databank (SAIL)). In addition to these conditions, the DataLoch respiratory registry includes Cystic Fibrosis (CF) and Wheeze (a common respiratory symptom).

This database of respiratory patients also contains research-ready data related to these patients' demographics, diagnoses, condition events, measurements and medications, expertly curated with clinical input and as much harmonisation as possible across the different UK registries using methodology in a soon-to-be-published paper. The data is presented in tables where each dataset has had its data chosen and derived from multiple sources and ran against algorithms to remove the noise from the raw data.

Dataset type
Health and disease
Dataset sub-type
Not applicable
Dataset population size
177700

Keywords

BREATHE, COPD, LUNG DISEASE, ILD, ASTHMA, CYSTIC FIBROSIS, Wheeze

Observations

Observed Node
Disambiguating Description
Measured Value
Measured Property
Observation Date

Persons

Patients with Asthma in DataLoch Respiratory

177700

Count

18 May 2023

Persons

Patients with Cystic Fibrosis in DataLoch Respiratory

400

Count

18 May 2023

Persons

Patients with Wheeze in DataLoch Respiratory

39500

Count

18 May 2023

Persons

Patients with COPD in DataLoch Respiratory

55200

Count

18 May 2023

Persons

Patients with ILD in DataLoch Respiratory

23700

Count

18 May 2023

Provenance

Purpose of dataset collection
Disease registry
Source of data extraction
EPR
Collection source setting
Primary care - Clinic, Secondary care - In-patients, Secondary care - Outpatients
Patient pathway description
Primary and secondary care.
Image contrast
Not stated
Biological sample availability
None/not available

Details

Publishing frequency
Other
Version
2.0.0
Modified

08/10/2024

Citation Requirements
DataLoch

Coverage

Start date

01/01/2004

Time lag
Not applicable
Geographic coverage
United Kingdom, Scotland, City of Edinburgh, Midlothian, East Lothian, West Lothian
Maximum age range
150
Follow-up

10 Years

Accessibility

Language
en
Controlled vocabulary
READ, ICD10, ATC, OTHER
Format
text/tsv

Data Access Request

Dataset pipeline status
Not available
Time to dataset access
Variable
Jurisdiction
GB-SCT, GB-GBN
Data use limitation
Project-specific restrictions
Data use requirements
Ethics approval required,Disclosure control,Project-specific restrictions
Data Controller
NHS Lothian
Data Processor
University of Edinburgh

Dataset Types: Health and disease


Collection Sources: Primary care - Clinic, Secondary care - In-patients, Secondary care - Outpatients