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DataLoch Respiratory

Population Size

177,700

People

Population Size statistic card

Years

2004

Years statistic card

Associated BioSamples

None/not available

Associated BioSamples statistic card

Geographic coverage

United Kingdom

Scotland

...see more

Geographic coverage statistic card

Lead time

Variable

Lead time statistic card

Summary

A database of South-East Scotland residents diagnosed with Asthma, Chronic Obstructive Pulmonary Disease, Interstitial Lung Disease, Cystic Fibrosis or Wheeze containing research-ready data on demographics, diagnoses, events, measurements and medications.

Documentation

DataLoch has collaborated with the BREATHE Health Data Research Hub and others at Health Data Research UK (HDRUK) to create a respiratory-related database of South-East Scotland residents (NHS Lothian) with chronic respiratory conditions, specifically Asthma, Chronic Obstructive Pulmonary Disease (COPD) and Interstitial Lung Disease (ILD). DataLoch's respiratory registry is one of three related registries alongside others in England (Clinical Practice Research Datalink (CPRD) Aurum) and Wales (Secure Anonymised Information Linkage Databank (SAIL)). In addition to these conditions, the DataLoch respiratory registry includes Cystic Fibrosis (CF) and Wheeze (a common respiratory symptom).

This database of respiratory patients also contains research-ready data related to these patients' demographics, diagnoses, condition events, measurements and medications, expertly curated with clinical input and as much harmonisation as possible across the different UK registries using methodology in a soon-to-be-published paper. The data is presented in tables where each dataset has had its data chosen and derived from multiple sources and ran against algorithms to remove the noise from the raw data.

Dataset type

Health and disease

Dataset sub-type

Not applicable

Dataset population size

177700

Keywords

Observations

Observed Node

Disambiguating Description

Measured Value

Measured Property

Observation Date

Persons

Patients with Asthma in DataLoch Respiratory

177700

Count

18 May 2023

Persons

Patients with Cystic Fibrosis in DataLoch Respiratory

400

Count

18 May 2023

Persons

Patients with Wheeze in DataLoch Respiratory

39500

Count

18 May 2023

Persons

Patients with COPD in DataLoch Respiratory

55200

Count

18 May 2023

Persons

Patients with ILD in DataLoch Respiratory

23700

Count

18 May 2023

Provenance

Purpose of dataset collection

Disease registry

Source of data extraction

EPR

Collection source setting

Primary care - Clinic, Secondary care - In-patients, Secondary care - Outpatients

Patient pathway description

Primary and secondary care.

Image contrast

Not stated

Biological sample availability

None/not available

Details

Publishing frequency

Other

Version

2.0.0

Modified

08/10/2024

Citation Requirements

DataLoch

Coverage

Start date

01/01/2004

Time lag

Not applicable

Geographic coverage

United Kingdom, Scotland, City of Edinburgh, Midlothian, East Lothian, West Lothian

Maximum age range

150

Follow-up

10 Years

Accessibility

Language

en

Controlled vocabulary

READ, ICD10, ATC, OTHER

Format

text/tsv

Data Access Request

Dataset pipeline status

Not available

Time to dataset access

Variable

Jurisdiction

GB-SCT, GB-GBN

Data use limitation

Project-specific restrictions

Data use requirements

Ethics approval required,Disclosure control,Project-specific restrictions

Data Controller

NHS Lothian

Data Processor

University of Edinburgh

Dataset Types: Health and disease


Collection Sources: Primary care - Clinic, Secondary care - In-patients, Secondary care - Outpatients

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