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DataLoch Respiratory
Population Size
177,700
People
Years
2004
Associated BioSamples
None/not available
Geographic coverage
United Kingdom
Scotland
...see more
Lead time
Variable
Summary
Documentation
DataLoch has collaborated with the BREATHE Health Data Research Hub and others at Health Data Research UK (HDRUK) to create a respiratory-related database of South-East Scotland residents (NHS Lothian) with chronic respiratory conditions, specifically Asthma, Chronic Obstructive Pulmonary Disease (COPD) and Interstitial Lung Disease (ILD). DataLoch's respiratory registry is one of three related registries alongside others in England (Clinical Practice Research Datalink (CPRD) Aurum) and Wales (Secure Anonymised Information Linkage Databank (SAIL)). In addition to these conditions, the DataLoch respiratory registry includes Cystic Fibrosis (CF) and Wheeze (a common respiratory symptom).
This database of respiratory patients also contains research-ready data related to these patients' demographics, diagnoses, condition events, measurements and medications, expertly curated with clinical input and as much harmonisation as possible across the different UK registries using methodology in a soon-to-be-published paper. The data is presented in tables where each dataset has had its data chosen and derived from multiple sources and ran against algorithms to remove the noise from the raw data.
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Observations
Observed Node | Disambiguating Description | Measured Value | Measured Property | Observation Date |
---|---|---|---|---|
Persons | Patients with Asthma in DataLoch Respiratory | 177700 | Count | 18 May 2023 |
Persons | Patients with Cystic Fibrosis in DataLoch Respiratory | 400 | Count | 18 May 2023 |
Persons | Patients with Wheeze in DataLoch Respiratory | 39500 | Count | 18 May 2023 |
Persons | Patients with COPD in DataLoch Respiratory | 55200 | Count | 18 May 2023 |
Persons | Patients with ILD in DataLoch Respiratory | 23700 | Count | 18 May 2023 |
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Modified
08/10/2024
Citation Requirements
Coverage
Start date
01/01/2004
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Maximum age range
Follow-up
10 Years
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