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The Aberdeen Children of the 1950's (ACONF)
Population Size
12,150
People
Years
1962
Associated BioSamples
None/not available
Geographic coverage
United Kingdom
Scotland
...see more
Lead time
Variable
Summary
Documentation
The Aberdeen Children of the 1950s (ACONF) is a dataset gathered through a longitudinal study from 12 150 participants born in Aberdeen between 1950 - 1956 that was repeated in 1990s, 2000s and is still ongoing. The most recent part of the study was conducted in 2021 and examined views on Covid-19.
The initial goal was to find the cause of learning disabilities among school children however, the existing dataset contents have been expanded over years to aid research in multiple fields such as health-related studies. The data includes invaluable information about the prevalence of heart disease, pregnancy details, intelligence, schooling, housing, and mental health across the generations.
Back in the 1950's, children in Aberdeen primary schools were tested by the University of Aberdeen with the Aberdeen Child Development Survey (ACDS) in maths and reading tests in December 1962. Four decades later, the survey was sent by post to all the now-adult participants with more questions about their personal life, health and living situation to draw correlation between the examined factors. The study yielded 7000 responses and was enriched by consulting the medical records. It has been possible to confirm vital status and place of residence for 98.5% of the 12,150 subjects from which 81% still lived in Scotland and 73% in the Grampian, including Aberdeen. 1431 subjects have been confirmed to be deceased (as at March 2018).
Linkages to hospital admissions and other health endpoints captured through the routine Scottish Morbidity Records system resulted in links to 41,159 hospital admission records, 1,258 cancer registrations and 1,084 psychiatric admissions (as at March 2008) and include an intergenerational linkage to 7928 deliveries in Scotland occurring to female members of the study population. A postal questionnaire to all surviving cohort members has also been distributed in 2001, with a response success rate of 63%.
Dataset type
Dataset sub-type
Dataset population size
Keywords
Observations
Observed Node | Disambiguating Description | Measured Value | Measured Property | Observation Date |
|---|---|---|---|---|
Persons | 12150 | Count | 03 Dec 1962 |
Provenance
Purpose of dataset collection
Collection source setting
Patient pathway description
The dataset contains information relating to Aberdeen Birth Cohorts and contains main items such as:
- Reading Survey Data 1962-4
- Family Survey Data 1964
- 2001 follow-up questionnaire
- Tracking and tracing of participants (2001 onwards)
- Neighbourhood and household level data (1960s)
- Schools data
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Biological sample availability
Structural Metadata
Details
Publishing frequency
Version
Modified
08/10/2024
Citation Requirements
Coverage
Start date
03/12/1962
Time lag
Geographic coverage
Maximum age range
Follow-up
Accessibility
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Controlled vocabulary
Format
Data Access Request
Dataset pipeline status
Access rights
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Access method category
Access service description
The Grampian Data Safe Haven
The Grampian Data Safe Haven (DaSH) is a secure, virtual healthcare data analysis and storage centre established by the University of Aberdeen and NHS Grampian to allow for the secure processing and linking of health data for the Grampian and Scottish population when it is not practicable to obtain consent from individual patients.
The DaSH Research Coordinators can provide advice and support in obtaining the required approvals for DaSH projects. A Permissions Pathway guide explaining the approvals process for DaSH projects is also available. In addition, DaSH has some template application forms with pre-populated information about DaSH that can be used by researchers during the permission application process as appropriate.
DaSH technology ensures unconsented healthcare, social data and other types of sensitive data are accessible for research and clinical purposes whilst protecting individuals’ privacy. Our ethos is built on working with clinicians, researchers and industry partners to improve health and social care by providing a safe and secure environment and enabling cutting-edge research.
The Grampian Data Safe Haven offers bespoke data storage, processing and linkage services based on the individual needs of your research project. The DaSH team works with researchers to provide detailed project planning and data management support whilst ensuring adherence to the highest standards of security and governance and protecting patient confidentiality.
Each project is supported by a Research Coordinator and Data Analyst to ensure projects adhere to permissions and outputs meet the project specification and comply with information security regulations. If you require non-DaSH-held datasets, we can assist with obtaining the relevant approvals, as well as coordinating the request with the data custodians and linkage between datasets.
Jurisdiction
Data use limitation
Data use requirements
Data Controller
University of Bristol.
The study administrator
Data Processor
Grampian Data Safe Haven (DaSH)
Given steering committee approval