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NHS Greater Glasgow and Clyde Intellectual Disability and Pain

Population Size

Not reported
Population Size statistic card

Years

2012 - 2022

Years statistic card

Associated BioSamples

None/not available

Associated BioSamples statistic card

Geographic coverage

United Kingdom

Scotland

Geographic coverage statistic card

Lead time

2-4 weeks

Lead time statistic card

Summary

Cohort of patients registered to NHS Greater Glasgow and Clyde Health Board with probable intellectual disability based on ICD-10 coding, and linked to records to explore likely burden of pain.

Documentation

This project dataset investigated pain medication prescribing patterns in adults with intellectual disabilities compared to a general population cohort. It was used to examine the impact of multimorbidity, polypharmacy and clinical/demographic factors on prescribing. It was also used to assess whether pain medication prescribing is associated with health outcomes like hospitalization and mortality. The cohort consists of over 10,700 adults with intellectual disabilities. The aim of the dataset was to increase understanding of pain medication use and its implications considering multimorbidity and polypharmacy.

Dataset type

Health and disease

Dataset sub-type

Not applicable

Associated media

https://www.nhsggc.scot/downloads/west-of-scotland-safe-haven-user-guide/

Keywords

Observations

Observed Node

Disambiguating Description

Measured Value

Measured Property

Observation Date

Events

Intellectual disability

10700

COUNT

06 Feb 2023

Provenance

Source of data extraction

Other

Collection source setting

Secondary care - Outpatients, Clinic, Secondary care - Accident and Emergency

Patient pathway description

Data for patients with conditions related to intellectual disability, based on ICD-10 diagnostic coding.

Image contrast

Not stated

Biological sample availability

None/not available

Structural Metadata

Details

Publishing frequency

Static

Version

1.0.0

Modified

08/10/2024

Distribution release date

06/02/2023

Citation Requirements

Local NHS boards

Coverage

Start date

01/01/2012

End date

31/12/2022

Time lag

Not applicable

Geographic coverage

United Kingdom, Scotland, Glasgow City

Maximum age range

150

Follow-up

Unknown

Accessibility

Language

en

Controlled vocabulary

NHS SCOTLAND NATIONAL CODES

Format

CSV

Data Access Request

Dataset pipeline status

Not available

Access rights

https://www.nhsggc.scot/hospitals-services/services-a-to-z/west-of-scotland-safe-haven/

Time to dataset access

2-4 weeks

Access request cost

Operate on a cost recovery basis, quotations available on request

Access service description

The West of Scotland Safe Haven is part of the regional Safe Haven network in Scotland. We operate as a REC-approved research database (IRAS 321198) within NHS Greater Glasgow and Clyde, and offer a delegated ethics route for data-only studies, cohort builds and linkage to a variety of deep, multi-modal clinical NHS data types - including structured, free text, and imaging - with hosting of deidentified research-ready datasets in an ISO-accredited Secure Data Environment. For more information, please email safehaven@ggc.scot.nhs.uk to discuss requirements.

Jurisdiction

GB-SCT

Data use limitation

General research use

Data use requirements

Project-specific restrictions

Data Controller

NHS Greater Glasgow and Clyde

Data Processor

NHS Greater Glasgow and Clyde

Dataset Types: Health and disease

Collection Sources: Secondary care - Outpatients, Clinic, Secondary care - Accident and Emergency

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