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Cancer Registration Data

Population Size

Not reported

Years

1971

Associated BioSamples

None/not available

Geographic coverage

https://www.geonames.org/6269131/england.html

Lead time

Other

Summary

PHE supply cancer registration data to NHS Digital. For linkage with other NHS Digital data to provide notifications on cancer status, be available to support research studies and to identify potential research participants for clinical trials.

Documentation

The National Cancer Registration and Analysis Service (NCRAS) at Public Health England supplies cancer registration data to NHS Digital. This data is available to be linked to other data held by NHS Digital in order to provide notifications on an individual's cancer status, be available to support research studies and to identify potential research participants for clinical trials.

NCRAS is the population-based cancer registry for England. It collects, quality assures and analyses data on all people living in England who are diagnosed with malignant and pre-malignant neoplasms, with national coverage since 1971.

The Cancer Registration dataset comprises England data to the present day, and Welsh data up to April 2017.

Timescales for dissemination of agreed data can be found under 'Our Service Levels' at the following link: https://digital.nhs.uk/services/data-access-request-service-dars/data-access-request-service-dars-process Standard response

Dataset type
Health and disease
Dataset sub-type
Not applicable
Associated media
https://www.cancerdata.nhs.uk/https://www.cancerresearchuk.org/

Keywords

Cancer Type, Cancer Behaviour, Cancer Anniversary, Cancer Site, cancer registra

Provenance

Source of data extraction
Other
Collection source setting
Clinic, Primary care - Clinic, Secondary care - In-patients, Private, Community, Other
Patient pathway description
Cancer
Image contrast
Not stated
Biological sample availability
None/not available

Structural Metadata

Details

Publishing frequency
Continuous
Version
2.0.0
Modified

08/10/2024

Citation Requirements
NHS ENGLAND

Coverage

Start date

01/01/1971

Time lag
2-6 months
Geographic coverage
https://www.geonames.org/6269131/england.html
Maximum age range
150
Follow-up
Other

Accessibility

Language
en
Controlled vocabulary
ODS, ICD10, ICD9
Format
CSV, Text

Data Access Request

Dataset pipeline status
Not available
Access rights
https://digital.nhs.uk/services/data-access-request-service-dars
Time to dataset access
Other
Access request cost
https://digital.nhs.uk/services/data-access-request-service-dars/data-access-request-service-dars-charges
Access method category
Direct access
Access service description

Once your DARS application has been approved, data will be made available by secure file transfer.

https://digital.nhs.uk/services/transfer-data-securely

Data use requirements
Institution-specific restrictions,Project-specific restrictions,Time limit on use
Data Controller
NHS England (NHSE)
Data Processor
NHS England (NHSE)

Dataset Types: Health and disease

Collection Sources: Clinic, Primary care - Clinic, Secondary care - In-patients, Private, Community, Other