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Born in Scotland (BiS)

Population Size

Not reported
Population Size statistic card

Years

2021

Years statistic card

Associated BioSamples

Whole blood

DNA

...see more

Associated BioSamples statistic card

Geographic coverage

United Kingdom

Scotland

Geographic coverage statistic card

Lead time

Not applicable

Lead time statistic card

Summary

Born in Scotland is an observational cohort study of pregnant women and their babies to investigate the drivers of short and long-term maternal and child wellbeing, linked to routinely collected data, biological samples, and ultrasound data.

Documentation

Born in Scotland is an ongoing observational longitudinal study set to capture a contemporary and representative cohort of mothers in Scotland and provide a valuable research resource to assess current clinical issues and health disparities and investigate the drivers of long-term maternal and child wellbeing. The current pilot study is open to recruitment and is testing consent models. The scale-up study intends to include 100,000 pregnant women and their children, constituting a diverse, flexible, and nationally representative maternity cohort. It is embedded within the NHS services, capitalising on capturing routinely collected data and biological samples, and allowing linkage to additional clinical and demographic data through the unique Community Health Index (CHI) number.

The pilot study currently targets all women aged 18-50 years old, living in Edinburgh and the Lothians and the Borders, and who are planning to give birth in Scotland, offering recruitment during any of the routine antenatal booking appointments. Data from the participants is extracted from the electronic maternity records, neonatal units, and clinical and diagnostic results. Biological samples are retrieved from hospital laboratories using samples that would otherwise be discarded after clinical use or collected at birth. The aim is to use the cohort to link to future maternal and child health and social care records to address key research questions to improve maternal and child health in Scotland.

Dataset type

Health and disease

Dataset sub-type

Not applicable

Keywords

Observations

Observed Node

Disambiguating Description

Measured Value

Measured Property

Observation Date

Events

Pregnancies recruited to the Born in Scotland study

722

Count

21 Dec 2023

Provenance

Collection source setting

Clinic, Secondary care - In-patients

Patient pathway description

The dataset captures data about pregnant women and their children. Initially the data is extracted from the electronic health care record from secondary care. Going forwards there may be options to link with GP data.

Image contrast

Not stated

Biological sample availability

Whole blood,DNA,Serum,Tissue

Structural Metadata

Details

Publishing frequency

Irregular

Version

1.0.0

Modified

08/10/2024

Coverage

Start date

25/10/2021

Time lag

2-6 months

Geographic coverage

United Kingdom, Scotland

Minimum age range

18

Maximum age range

50

Follow-up

Continuous

Accessibility

Language

en

Controlled vocabulary

LOCAL

Format

Excel Spreadsheet

Data Access Request

Dataset pipeline status

Not available

Time to dataset access

Not applicable

Jurisdiction

GB-SCT

Data use limitation

Research use only

Data use requirements

Project-specific restrictions

Data Controller

The University of Edinburgh, NHS Lothian

Dataset Types: Health and disease


Collection Sources: Clinic, Secondary care - In-patients

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