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Born in Scotland (BiS)

Population Size

Not reported

Years

2021

Associated BioSamples

Whole blood

DNA

...see more

Geographic coverage

United Kingdom

Scotland

Lead time

Not applicable

Summary

Born in Scotland is an observational cohort study of pregnant women and their babies to investigate the drivers of short and long-term maternal and child wellbeing, linked to routinely collected data, biological samples, and ultrasound data.

Documentation

Born in Scotland is an ongoing observational longitudinal study set to capture a contemporary and representative cohort of mothers in Scotland and provide a valuable research resource to assess current clinical issues and health disparities and investigate the drivers of long-term maternal and child wellbeing. The current pilot study is open to recruitment and is testing consent models. The scale-up study intends to include 100,000 pregnant women and their children, constituting a diverse, flexible, and nationally representative maternity cohort. It is embedded within the NHS services, capitalising on capturing routinely collected data and biological samples, and allowing linkage to additional clinical and demographic data through the unique Community Health Index (CHI) number.

The pilot study currently targets all women aged 18-50 years old, living in Edinburgh and the Lothians and the Borders, and who are planning to give birth in Scotland, offering recruitment during any of the routine antenatal booking appointments. Data from the participants is extracted from the electronic maternity records, neonatal units, and clinical and diagnostic results. Biological samples are retrieved from hospital laboratories using samples that would otherwise be discarded after clinical use or collected at birth. The aim is to use the cohort to link to future maternal and child health and social care records to address key research questions to improve maternal and child health in Scotland.

Dataset type
Health and disease
Dataset sub-type
Not applicable

Keywords

Dataset, Cohort study, Longitudinal data, Pregnancy, Maternity, Maternal health, Health outcomes, Child health

Observations

Observed Node
Disambiguating Description
Measured Value
Measured Property
Observation Date

Events

Pregnancies recruited to the Born in Scotland study

722

Count

21 Dec 2023

Provenance

Collection source setting
Clinic, Secondary care - In-patients
Patient pathway description
The dataset captures data about pregnant women and their children. Initially the data is extracted from the electronic health care record from secondary care. Going forwards there may be options to link with GP data.
Image contrast
Not stated
Biological sample availability
Whole blood,DNA,Serum,Tissue

Structural Metadata

Details

Publishing frequency
Irregular
Version
1.0.0
Modified

08/10/2024

Coverage

Start date

25/10/2021

Time lag
2-6 months
Geographic coverage
United Kingdom, Scotland
Minimum age range
18
Maximum age range
50
Follow-up
Continuous

Accessibility

Language
en
Controlled vocabulary
LOCAL
Format
Excel Spreadsheet

Data Access Request

Dataset pipeline status
Not available
Time to dataset access
Not applicable
Jurisdiction
GB-SCT
Data use limitation
Research use only
Data use requirements
Project-specific restrictions
Data Controller
The University of Edinburgh, NHS Lothian

Dataset Types: Health and disease


Collection Sources: Clinic, Secondary care - In-patients