HDR Gateway logo
HDR Gateway logo

Bookmarks

Born in Wales

Population Size

365,000

People

Years

2011

Associated BioSamples

None/not available

Geographic coverage

United Kingdom

Wales

Lead time

Not applicable

Summary

Born in Wales is a comprehensive, population-based database which brings together data from maternity care, neonatal, birth, infant and child health, education records and survey responses including census data. Recruitment, 30,000 births per year.

Documentation

Born in Wales links electronic data of mothers, babies, and partners (including self-identified biological fathers or mothers’ partners) for children born in Wales, encompassing approximately 30,000 annual births. The linked health records include primary care data (from Wales Longitudinal General Practice (WLGP)), secondary care (from hospital admissions, emergency care, inpatient from Patient Episode Database for Wales (PEDW), and outpatient from Outpatient Database for Wales (OPDW)), maternal indicators (midwife data), public health records (vaccination uptake, hearing checks, health visitor assessment, breastfeeding initiation and duration, and COVID-19 vaccination/testing) as well as a core database for the National Community Child Health Database (NCCH). It also uses data from the ONS Annual Birth Extract (ADBE) for all births registered in Wales. Additionally, data from education, Census 2011, substance abuse, social care (looked after children, child protection register, children in receipt of care, and family court) have been successfully linked.
Dataset type
Health and disease
Dataset sub-type
Not applicable
Dataset population size
365000

Keywords

Born in Wales, Child Health, parents, Growing Up, cohort study, Mental Health, Development, Dataset, Linked longitudinal, Pregnancy, life course, Deprivation, socioeconomic status

Observations

Observed Node
Disambiguating Description
Measured Value
Measured Property
Observation Date

Persons

365000

2

07 Nov 2023

Provenance

Collection source setting
Other, Clinic, Primary care - Clinic, Secondary care - Outpatients, Secondary care - In-patients, Community
Patient pathway description
All pathways relating to maternal and child health
Image contrast
Not stated
Biological sample availability
None/not available

Structural Metadata

Details

Publishing frequency
Other
Version
2.0.0
Modified

08/10/2024

Citation Requirements
SAIL Databank

Coverage

Start date

01/01/2011

Time lag
1-2 months
Geographic coverage
United Kingdom, Wales
Maximum age range
60
Follow-up
Continuous

Accessibility

Language
en
Controlled vocabulary
OPCS4, READ, ICD10, NHS WALES NATIONAL CODES
Format
SQL Database table

Data Access Request

Dataset pipeline status
Not available
Time to dataset access
Not applicable
Access request cost
Data provision is free from SAIL. Overall project costing depends on the number of people that require access to the SAIL Gateway, the activities that SAIL needs to complete (e.g. loading non-standard datasets), data refreshes, analytical work required, disclosure control process, and special case technological requirements.
Access method category
TRE/SDE
Access service description
The SAIL Databank is powered by the UK Secure e-Research Platform (UKSeRP). Following approval through safeguard processes, access to project-specific data within the secure environment is permitted using two-factor authentication.
Jurisdiction
GB-WLS
Data use limitation
Research-specific restrictions,General research use
Data Controller
SAIL Databank
Data Processor
SAIL Databank

Dataset Types: Health and disease


Collection Sources: Other, Clinic, Primary care - Clinic, Secondary care - Outpatients, Secondary care - In-patients, Community