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Our Future Health Linked Health Records Data
Population Size
1,527,723
People
Years
2021 - 2025
Associated BioSamples
None/not available
Geographic coverage
United Kingdom
Lead time
Not applicable
Summary
Documentation
Our Future Health is a prospective, observational cohort study of the general adult population of the United Kingdom (UK). The programme aims to support a wide range of observational health research. We gather personal, health and lifestyle information from each participant through a self-completed baseline health questionnaire and at an in-person clinic visit. We will further link this data to other health-related data sets. Participants have also given consent for us to recontact them, for example to invite them to take part in further or repeat data collections, or other embedded studies such as clinical trials.
The Our Future Health programme is currently open to all adults (18 years and older) living in the UK. In July 2022, we started recruiting participants in England and will continue to expand across the rest of the UK. The data we’ve gathered so far (June 2025) includes linked NHS England clinical data on 1,527,723 participants
Additional linked datasets are available:
- ‘Baseline Health Questionnaire Data’ which contains baseline demographic information and responses to our health questionnaire from 1,781,891 participants.
- ‘Genotype Array Data’ which includes genotype array data on 707,522 variants from a subset of 650,979 participants
- Clinical Measurements Data which contains clinical data from 1,324,884 participants.
The data is stored in the Our Future Health Trusted Research Environment. We de-identify all participant data we gather before it’s available for use. All researchers will need to become registered researchers at Our Future Health and have an approved research study before they're given access to the data.
We aim to collect a variety of data types from up to 5 million adult participants from across the UK. We hope to make more data types available on a quarterly basis.
Keywords
Observations
Observed Node | Disambiguating Description | Measured Value | Measured Property | Observation Date |
|---|---|---|---|---|
Persons | Persons who consented to joining Our Future Health with a completed questionnaire and have been linked to their health records through NHS England. | 1527723 | Count | 01 Apr 2025 |
Events | Persons who consented to joining Our Future Health with a completed questionnaire and have been linked to Admitted Patient Care (HES APC) records – Episodes of care where a participant is admitted at NHS hospitals in England. | 6054540 | Count | 31 Jan 2025 |
Events | Persons who consented to joining Our Future Health with a completed questionnaire and have been linked to NHS HES A&E records – Attendances recorded at major A&E departments, single specialty A&E departments, walk-in centres, and minor injury units. | 3873163 | Count | 31 Mar 2020 |
Events | Persons who consented to joining Our Future Health with a completed questionnaire and have been linked to NHS Outpatient (HES OP) records – Outpatient appointments at NHS hospitals in England. | 47403616 | Count | 31 Jan 2025 |
Events | Persons who consented to joining Our Future Health with a completed questionnaire and have been linked to NHS and Office of National Statistics Death Registration records for England and Wales | 2925 | Count | 05 Mar 2025 |
Events | Persons who consented to joining Our Future Health with a completed questionnaire and have been linked to National Disease Registration Service (NDRS) Cancer Pathways | 9322047 | Count | 21 Jul 2024 |
Events | Persons who consented to joining Our Future Health with a completed questionnaire and have been linked to NDRS Cancer Researcher Patient Tumour records. | 168363 | Count | 31 Dec 2022 |
Events | Persons who consented to joining Our Future Health with a completed questionnaire and have been linked to NDRS Cancer Registry Treatment records. | 372998 | Count | 20 Jun 2024 |
Provenance
Details
08/10/2024
12/06/2025
Coverage
30/04/2021
01/04/2025
Accessibility
Data Access Request
The Our Future Health Trusted Research Environment (TRE) is a highly secure computing environment, where researchers can access the Our Future Health data they have applied for. The TRE is subject to rules, monitoring, and strict controls to protect the data and participants' privacy.
The Our Future Health TRE has a range of tools available for analysing the data. More information is available here:
https://research.ourfuturehealth.org.uk/analysing-the-data/
If you think our TRE will not be able to meet your research needs, for example, if you’ve developed complex software or analytical tools that would be hard to recreate, you can apply to access the data using a different TRE.