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Our Future Health Linked Health Records Data

Population Size

957,444

People

Years

2021 - 2024

Associated BioSamples

None/not available

Geographic coverage

United Kingdom

Lead time

Not applicable

Summary

Our Future Health is a prospective, observational cohort study of the general adult population of the United Kingdom. This dataset includes linked health records from the NHS in England from 1, 151, 453 participants.

Documentation

Our Future Health is a prospective, observational cohort study of the general adult population of the United Kingdom (UK). The programme aims to support a wide range of observational health research. We gather personal, health and lifestyle information from each participant through a self-completed baseline health questionnaire and at an in-person clinic visit. We will further link this data to other health-related data sets. Participants have also given consent for us to recontact them, for example to invite them to take part in further or repeat data collections, or other embedded studies such as clinical trials.

The Our Future Health programme is currently open to all adults (18 years and older) living in the UK. In July 2022, we started recruiting participants in England and will continue to expand across the rest of the UK. The data we’ve gathered so far ( December 2024) includes linked NHS England clinical data on 1, 151, 453 participants

Additional linked datasets are available:

  • ‘Baseline Health Questionnaire Data’ which contains baseline demographic information and responses to our health questionnaire from 1, 414, 260 participants.
  • ‘Genotype Array Data’ which includes genotype array data on 707, 522 variants from a subset of 651, 050 participants
  • 'Clinical Measurements Data' which contains clinical data from 1, 025, 498 participants.

The data is stored in the Our Future Health Trusted Research Environment. We de-identify all participant data we gather before it’s available for use. All researchers will need to become registered researchers at Our Future Health and have an approved research study before they're given access to the data.

We aim to collect a variety of data types from up to 5 million adult participants from across the UK. We hope to make more data types available on a quarterly basis.

Dataset type
Health and disease
Dataset sub-type
Not applicable
Dataset population size
957,444

Keywords

Research, United Kingdom, Cohort study, Self reported health, Mental Health, Lifestyle, Sociodemographics, Death, Accident and Emergency, Hospital Episode Statistics

Observations

Observed Node
Disambiguating Description
Measured Value
Measured Property
Observation Date

Persons

Persons who consented to joining Our Future Health with a completed questionnaire, have been linked to the NHS and have NHS clinical data records.

1151453

Count

15 Oct 2024

Events

Persons who consented to joining Our Future Health with a completed questionnaire and have been linked to Admitted Patient Care (HES APC) records – Episodes of care where a participant is admitted at NHS hospitals in England.

832872

Count

31 Jul 2024

Events

Persons who consented to joining Our Future Health with a completed questionnaire and have been linked to NHS HES A&E records – Attendances recorded at major A&E departments, single specialty A&E departments, walk-in centres, and minor injury units.

796288

Count

31 Mar 2020

Events

Persons who consented to joining Our Future Health with a completed questionnaire and have been linked to NHS Outpatient (HES OP) records – Outpatient appointments at NHS hospitals in England.

1063872

Count

31 Jul 2024

Events

Persons who consented to joining Our Future Health with a completed questionnaire and have been linked to NHS and Office of National Statistics Death Registration records for England and Wales

1543

Count

03 Sep 2024

Events

Persons who consented to joining Our Future Health with a completed questionnaire and have been linked to National Disease Registration Service (NDRS) Cancer Pathways

39457

Count

23 Aug 2024

Events

Persons who consented to joining Our Future Health with a completed questionnaire and have been linked to NDRS Cancer Researcher Patient Tumour records.

66888

Count

31 Dec 2021

Events

Persons who consented to joining Our Future Health with a completed questionnaire and have been linked to NDRS Cancer Registry Treatment records.

56048

Count

05 Jul 2023

Provenance

Purpose of dataset collection
Study
Collection source setting
Secondary care - In-patients, Other
Image contrast
Not stated
Biological sample availability
None/not available

Structural Metadata

Details

Publishing frequency
Quarterly
Version
2.0.0
Modified

08/10/2024

Distribution release date

12/12/2024

Citation Requirements
Our Future Health

Coverage

Start date

30/04/2021

End date

15/10/2024

Time lag
Variable
Geographic coverage
United Kingdom
Minimum age range
18
Maximum age range
150
Follow-up
Other

Accessibility

Language
en
Controlled vocabulary
ICD10, OPCS4, READ
Format
csv, tsv

Data Access Request

Dataset pipeline status
Not available
Time to dataset access
Not applicable
Access service description

The Our Future Health Trusted Research Environment (TRE) is a highly secure computing environment, where researchers can access the Our Future Health data they have applied for. The TRE is subject to rules, monitoring, and strict controls to protect the data and participants' privacy.

The Our Future Health TRE has a range of tools available for analysing the data. More information is available here:

https://research.ourfuturehealth.org.uk/analysing-the-data/

If you think our TRE will not be able to meet your research needs, for example, if you’ve developed complex software or analytical tools that would be hard to recreate, you can apply to access the data using a different TRE.

Jurisdiction
GB-ENG
Data use limitation
Research use only
Data use requirements
Project-specific restrictions, Geographical restrictions, Return to database or resource, Time limit on use, User-specific restriction
Data Controller
Our Future Health
Data Processor
None

Dataset Types: Health and disease


Collection Sources: No collection sources listed