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Connected Bradford - Secondary Care : Autism

Population Size

5,106

People

Population Size statistic card

Years

2015 - 2022

Years statistic card

Associated BioSamples

None/not available

Associated BioSamples statistic card

Geographic coverage

United Kingdom

England

...see more

Geographic coverage statistic card

Lead time

1-2 months

Lead time statistic card

Summary

The Bradford District CAMHS Unit and Others Autism FDM. Contains textual description of autism diagnosis with patient contacts and referrals with anonymised patient id , reformatted to Connected Bradford FDM standards.

Documentation

The Connected Bradford - Autism Flexible Data Model (FDM) Contains routinely collected data for approximately 5,000 patients. The dataset has been fully anonymised, but can link to other Connected Bradford FDM's.

The Autism FDM last build date was 2024-06-06 and contains data up to : 2022-05-15.. The observation period for this data is: 2015-02-27 to 2022-05-15

The FDM is made up of 1 source table using routinely collected data for 5,106 individuals, aged 4 to 24.

The tables are as supplied with minimal reformatting.

It includes basic patient demographics, and information about consultations.

Dataset type

Health and disease

Dataset sub-type

Not applicable

Dataset population size

5106

Associated media

https://github.com/ConnectedBradford/Connected-Bradford-Autism

Keywords

Observations

Observed Node

Disambiguating Description

Measured Value

Measured Property

Observation Date

Persons

This population within this dataset covers those individuals who have attended a camhs or other child mental health referral.

5106

Count

09 May 2024

Provenance

Collection source setting

Community, Services, Home, Private, Other

Patient pathway description

This dataset is representative of the patient pathway as it documents CAMHS and other social care visits, for both a consultations and a referral to e servicess. This dataset can be linked to other secondary care and primary care data including but not limited to Primary Care, Health Visitor, Child Health, A&E, Social Care etc . It can also be linked to other, non health, Connected Bradford data sources.

Image contrast

Not stated

Biological sample availability

None/not available

Structural Metadata

Details

Publishing frequency

Irregular

Version

1.0.0

Modified

08/10/2024

Distribution release date

15/05/2022

Citation Requirements

Connected Bradford

Coverage

Start date

27/02/2015

End date

15/05/2022

Time lag

1-2 months

Geographic coverage

United Kingdom, England, Yorkshire and The Humber, Bradford

Minimum age range

4

Maximum age range

24

Follow-up

Unknown

Accessibility

Language

en

Controlled vocabulary

LOCAL

Format

text

Data Access Request

Dataset pipeline status

Not available

Access rights

https://github.com/ConnectedBradford

Time to dataset access

1-2 months

Access service description

Expression of Interest (EOI) are reviewed 3 monthly by the Connected Bradford Board. For the majority of EOI's, a subset of various FDM's fitting the requirements of the research will be provided for use by the researcher. The extract will only contain the variables required by the research. Access to data is via a secure R or Python environment hosted by the SDE.

A Data Sharing Contract and Agreement will need to be signed by the researcher's institution and Bradford Teaching Hospitals NHS Foundation Trust. For more information see https://github.com/ConnectedBradford

Jurisdiction

GB

Data use limitation

Research use only

Data use requirements

Institution-specific restrictions

Data Controller

Kuldeep Sohal

Data Processor

John Birkinshaw

Dataset Types: Health and disease

Collection Sources: Community, Services, Home, Private, Other

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