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Connected Bradford - Secondary Care : Autism

Population Size

5,106

People

Years

2015 - 2022

Associated BioSamples

None/not available

Geographic coverage

United Kingdom

England

...see more

Lead time

Not applicable

Summary

The Bradford District CAMHS Unit and Others Autism FDM. Contains textual description of autism diagnosis with patient contacts and referrals with anonymised patient id, reformatted to Connected Bradford FDM standards.

Documentation

The Connected Bradford - Autism Flexible Data Model (FDM) Contains routinely collected data for approximately 5, 000 patients. The dataset has been fully anonymised, but can link to other Connected Bradford FDM's.

The Autism FDM last build date was 2024-06-06 and contains data up to : 2022-05-15.. The observation period for this data is: 2015-02-27 to 2022-05-15

The FDM is made up of 1 source table using routinely collected data for 5, 106 individuals, aged 4 to 24.

The tables are as supplied with minimal reformatting.

It includes basic patient demographics, and information about consultations.

Dataset type
Health and disease
Dataset sub-type
Not applicable
Dataset population size
5,106
Associated media
https://github.com/ConnectedBradford/Connected-Bradford-Autism

Keywords

Clinical Dataset, patient administration system, Mental Health, Child Health, asd, ADHD, LAC, EHCP, Cognitive, Cognitive development, Cognitive Measures, Depression, Anxiety, CBT, Counselling, Talking therapy, Cognitive, National Cor, Learning Disabilities, Mental Health, Learning Disabilities, Child and Adolescent Mental Health Servic

Observations

Observed Node
Disambiguating Description
Measured Value
Measured Property
Observation Date

Persons

This population within this dataset covers those individuals who have attended a camhs or other child mental health referral.

5106

Count

09 May 2024

Provenance

Collection source setting
Community, Services, Home, Private, Other
Patient pathway description
This dataset is representative of the patient pathway as it documents CAMHS and other social care visits, for both a consultations and a referral to e servicess. This dataset can be linked to other secondary care and primary care data including but not limited to Primary Care, Health Visitor, Child Health, A&E, Social Care etc . It can also be linked to other, non health, Connected Bradford data sources.
Image contrast
Not stated
Biological sample availability
None/not available

Structural Metadata

Details

Publishing frequency
Irregular
Version
1.0.0
Modified

08/10/2024

Distribution release date

15/05/2022

Citation Requirements
Connected Bradford

Coverage

Start date

27/02/2015

End date

15/05/2022

Time lag
1-2 months
Geographic coverage
United Kingdom, England, Yorkshire and The Humber, Bradford
Minimum age range
4
Maximum age range
24
Follow-up
Unknown

Accessibility

Language
en
Controlled vocabulary
LOCAL
Format
text

Data Access Request

Dataset pipeline status
Not available
Access rights
https://github.com/ConnectedBradford
Time to dataset access
Not applicable
Access service description

Expression of Interest (EOI) are reviewed 3 monthly by the Connected Bradford Board. For the majority of EOI's, a subset of various FDM's fitting the requirements of the research will be provided for use by the researcher. The extract will only contain the variables required by the research. Access to data is via a secure R or Python environment hosted by the SDE.

A Data Sharing Contract and Agreement will need to be signed by the researcher's institution and Bradford Teaching Hospitals NHS Foundation Trust. For more information see

https://github.com/ConnectedBradford
Jurisdiction
GB
Data use limitation
Research use only
Data use requirements
Institution-specific restrictions
Data Controller
Kuldeep Sohal
Data Processor
John Birkinshaw

Dataset Types: Health and disease

Collection Sources: No collection sources listed