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Glaucoma dataset at University Hospitals Birmingham

Population Size

Not reported

Years

2006 - 2021

Associated BioSamples

None/not available

Geographic coverage

United Kingdom

England

Lead time

Not applicable

Summary

The University Hospitals Birmingham (UHB) glaucoma dataset is a longitudinal dataset consisting of routinely collected clinical metadata from patients receiving treatment for glaucoma at UHB, from 2007 to the present.

Documentation

Background Glaucoma is a worldwide leading cause of irreversible sight loss. Worldwide, an estimated 60 million people have glaucoma. Glaucoma is a condition of increased intraocular pressure in the eye. Because it may be asymptomatic until a relatively late stage, diagnosis is frequently delayed. There are four general categories of glaucoma: primary open-angle and angle-closure, and secondary open and angle-closure glaucoma.

The UHB glaucoma dataset is a longitudinal dataset consisting of routinely collected clinical metadata from patients receiving treatment for glaucoma at UHB, from 2007 to the present.

This dataset encompasses all patients at UHB who have received a diagnosis of primary or secondary glaucoma or ocular hypertension. Clinical metadata includes demographic information, visual acuities, central corneal thickness, intraocular pressure, optic nerve head findings, and mean deviation of the Humphrey visual fields.

This dataset is continuously updating, however, as of 1st October 2021, it consisted of 5065 people This is a large single centre database from patients with glaucoma and covers more than a decade of follow-up for these patients.

Geography The Queen Elizabeth Hospital is one of the largest single-site hospitals in the United Kingdom, with 1, 215 inpatient beds. Queen Elizabeth Hospital is part of one of the largest teaching trusts in England (University Hospitals Birmingham). Set within the West Midlands and it has a catchment population of circa 5.9million. The region includes a diverse ethnic, and socio-economic mix, with a higher than UK average of minority ethnic groups. It has a large number of elderly residents but is the youngest population in the UK. There are particularly high rates of diabetes, physical inactivity, obesity, and smoking.

Data source: Ophthalmology department at Queen Elizabeth Hospital, University Hospitals Birmingham NHS Foundation Trust, Birmingham, United Kingdom.

Dataset type
Health and disease
Dataset sub-type
Not applicable

Keywords

Primary Open-Angle, Primary Open-Angle Glaucoma, Primary Angle-Closure, Primary Angle-Closure Glaucoma, Secondary Open-Angle Glaucoma, Secondary Angle-Closure Glaucoma, Congenital Glaucoma, Secondary Glaucoma, Acute Glaucoma, Chronic Glaucoma, Pigmentary Glaucoma, Fuchs Heterochromic Iridocyclitis, Phacolytic Glaucoma, Phacomorphic Glaucoma, Pseudoexfoliative Glaucoma, Traumatic Glaucoma, Neovascular Glaucoma, Iridocorneal Endothelial Syndrome, Uveitic Glaucoma, Normal Tension, Normal Tension Glaucoma, Low Tension, Low Tension Glaucoma, Intraocular Pressure, Optic Nerve Head, Perimetric Mean Deviation, Mean Deviation, Tonopen, Goldman, Tonometry, Central Corneal Thickness, Drops, Anterior Chamber, Angle, Visual Field, Humphrey, Referral, Vision, Visual Acuity, Sight Loss, Sight Impairment, Surgery, Trabeculectomy, Laser, Selective Laser Trabeculoplasty, Trabecular Meshwork, Gonioscopy, Perimetry, Pachymetry, Nerve Fibre Layer, Prostaglandin Analogs, Betat-Adrenergic Receptors Antagonists, Alpha2-Adrenergic Agonists, Alpha Agonists, Miotic Agents, Carbonic Anhydrase Inhibitors, Antimetabolite, 5-Fluoruracil, Mitomycin- C, Argon Laser Trabeculoplasty, Nd:Yag Laser Peripheral Iridotomy, Peripheral Iridotomy, Diode Laser Cycloablation, Cyclodiode, Glaucoma Drainage Implants, Cataract

Observations

Observed Node
Disambiguating Description
Measured Value
Measured Property
Observation Date

Events

5065 patients

5065

Count

01 Oct 2021

Provenance

Purpose of dataset collection
Care
Source of data extraction
EPR
Collection source setting
Clinic, Secondary care - Outpatients, Secondary care - In-patients
Patient pathway description
The UHB glaucoma dataset is representative of the patient pathway for diagnosis and treatment of glaucoma, and longitudinal follow-up.
Image contrast
Not stated
Biological sample availability
None/not available

Structural Metadata

Details

Publishing frequency
Annual
Version
1.0.0
Modified

08/10/2024

Distribution release date

01/10/2021

Citation Requirements
University Hospitals Birmingham NHS Foundation Trust

Coverage

Start date

01/08/2006

End date

20/09/2021

Time lag
2-4 weeks
Geographic coverage
United Kingdom, England, West Midlands
Minimum age range
12
Maximum age range
150
Follow-up

10 Years

Accessibility

Language
en
Controlled vocabulary
NHS NATIONAL CODES
Format
SQL, CSV

Data Access Request

Dataset pipeline status
Not available
Time to dataset access
Not applicable
Access method category
TRE/SDE
Access service description
INSIGHT adheres to HDRUK data access principles including the five SAFES anonymised data is provided into an agreed Trusted Research Environment such as the PIONEER Microsoft Azure TRE at University Hospitals Birmingham NHSFT or equivalent external safe environment, under data license.
Jurisdiction
GB-ENG, GB-GB
Data use limitation
Research-specific restrictions
Data use requirements
Project-specific restrictions
Data Controller
University Hospitals Birmingham NHS Foundation Trust
Data Processor
NOT APPLICABLE

Dataset Types: Health and disease


Collection Sources: No collection sources listed