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Eye images and retinopathy grades in diabetic eye screening

Population Size

Not reported

Years

2020 - 2021

Associated BioSamples

None/not available

Geographic coverage

United Kingdom

England

Lead time

Not applicable

Summary

The dataset is a longitudinal dataset consisting of eye images and retinopathy grades from those who are screened for diabetic retinopathy in the Birmingham, Solihull and Black Country DR screening program.

Documentation

Background Diabetes mellitus affects over 3.9 million people in the United Kingdom (UK), with over 2.6 million people in England alone. Diabetic retinopathy (DR) is a common microvascular complication of type 1 and type 2 diabetes and remains a major cause of vision loss and blindness in those of working age. The National Institute for Health and Care Excellence recommendations are for annual screening using digital retinal photography for all patients with diabetes aged 12 years and over until such time as specialist surveillance or referral to Hospital Eye Services (HES) is required.

Birmingham, Solihull and Black Country DR screening program is a member of the National Health Service (NHS) Diabetic Eye Screening Programme. This dataset contains routine community annual longitudinal screening patient results of over 200000 patients with screening results per patient ranging from 1 year to 15 years. Key data included in this imaging dataset are: • Fundal photographs • The national screening diabetic grade category (seven categories from R0M0 to R3M1) • Screening Outcome (digital surveillance and time referral to HES)

Geography Birmingham, Solihull and Black Country is set within the West Midlands and has a population of circa 5.9million. The region includes a diverse ethnic, and socio-economic mix, with a higher than UK average of minority ethnic groups. It has a large number of elderly residents but is the youngest population in the UK. There are particularly high rates of diabetes, physical inactivity, obesity, and smoking.

Data source: The Birmingham, Solihull and Black Country Data Set, University Hospitals Birmingham NHS Foundation Trust, Birmingham, United Kingdom. They manage over 200, 000 patients, with longitudinal follow-up up to 15 years, making this the largest urban diabetic screening scheme in Europe.

Dataset type
Health and disease
Dataset sub-type
Not applicable

Keywords

Background Diabetic Retinopathy, Diabetic Retinopathy, Digital Retinal Photography, Digital Surveillance, Clinically Significant Macular Oedema, Diabetic retinopathy, Diabetic Maculopathy, Diabetes Mellitus Type 1, Diabetes Mellitus Type 2, Fundus Photographs, Grading, Gestational Diabetes, Haemorrhage, Hospital Eye Service, Images, Photograph, Photo, Optic Disc, macula, Grade, outcomes, Microaneurysm, Non-Proliferative Diabetic Retinopathy, Normal, New Vessels, Proliferative Diabetic Retinopathy, Retina, Screening, Screening Programme

Observations

Observed Node
Disambiguating Description
Measured Value
Measured Property
Observation Date

Events

Over 200,000 patients 2.5 million grading events at any level 1.68 million gradings including ophthalmology referrals 1 million final grades from community screens 0ver 6 million images over 15 years

200000

Count

01 Oct 2021

Provenance

Purpose of dataset collection
Care
Source of data extraction
EPR
Collection source setting
Clinic, Secondary care - In-patients, Secondary care - Outpatients
Patient pathway description
The Birmingham, Solihull and Black Country dataset is representative of the patient pathway for community screening and grading of diabetic eye disease. It covers standard UK Public Health England Diabetic Eye Screening requirements and will include patients receiving screening through the standard model, routine diabetic screening, surveillance and slit lamp examination.
Image contrast
Not stated
Biological sample availability
None/not available

Structural Metadata

Details

Publishing frequency
Annual
Version
1.0.0
Modified

08/10/2024

Distribution release date

01/10/2021

Citation Requirements
University Hospitals Birmingham NHS Foundation Trust

Coverage

Start date

30/11/2020

End date

31/03/2021

Time lag
2-4 weeks
Geographic coverage
United Kingdom, England, West Midlands
Minimum age range
12
Maximum age range
110
Follow-up

10 Years

Accessibility

Language
en
Controlled vocabulary
NHS NATIONAL CODES
Format
SQL, CSV, Images

Data Access Request

Dataset pipeline status
Not available
Time to dataset access
Not applicable
Access method category
TRE/SDE
Access service description
INSIGHT adheres to HDRUK data access principles including the five SAFES anonymised data is provided into an agreed Trusted Research Environment such as the PIONEER Microsoft Azure TRE at University Hospitals Birmingham NHSFT or equivalent external safe environment, under data license.
Jurisdiction
GB-ENG, GB-GB
Data use limitation
Research-specific restrictions
Data use requirements
Project-specific restrictions
Data Controller
University Hospitals Birmingham NHS Foundation Trust

Dataset Types: Health and disease


Collection Sources: No collection sources listed