Bookmarks
ADMISSION programme data: Multiple long-term conditions in hospital patients
Population Size
119,815
People
Years
2020 - 2024
Associated BioSamples
None/not available
Geographic coverage
https://www.geonames.org/2634343/west-midlands.html
Lead time
1-2 months
Summary
Documentation
Improving outcomes for people with multiple long term conditions is a priority as set out in the NHS long term plan. ADMISSION is a Research Collaborative funded by UK Research and Innovation and the National Institute for Health Research and Care Research that brings together scientists, clinicians and patients from five UK universities and hospitals (Newcastle University and Newcastle Hospitals NHS Foundation Trust, University of Birmingham (PIONEER – the Health Data Research UK Acute Care Hub), Manchester Metropolitan University, University of Dundeeand University College London) to transform understanding of multiple long-term conditions in hospital patients.
As part of this, PIONEER has curated a highly granular dataset of 119,815 unique hospitalised patients focusing on the impact of multiple long term conditions. The data includes admission details, demography, initial presentation, presenting symptoms, diagnoses, treatments, therapy, medications, imaging, wards, investigations, procedures, operations and outcomes. The current dataset includes admissions from 01-01-2000 to 07-02-2024 but can be expanded to assess other timelines of interest.
Geography: The West Midlands (WM) has a population of 6 million & includes a diverse ethnic & socio-economic mix. UHB is one of the largest NHS Trusts in England, providing direct acute services & specialist care across four hospital sites, with 2.2 million patient episodes per year, 2750 beds & > 120 ITU bed capacity. UHB runs a fully electronic healthcare record (EHR) (PICS; Birmingham Systems), a shared primary & secondary care record (Your Care Connected) & a patient portal “My Health”.
Data set availability: Data access is available via the PIONEER Hub for projects which will benefit the public or patients. This can be by developing a new understanding of disease, by providing insights into how to improve care, or by developing new models, tools, treatments, or care processes. Data access can be provided to NHS, academic, commercial, policy and third sector organisations. Applications from SMEs are welcome. There is a single data access process, with public oversight provided by our public review committee, the Data Trust Committee. Contact pioneer@uhb.nhs.uk or visit www.pioneerdatahub.co.uk for more details.
Available supplementary data: Matched controls; ambulance and community data. Unstructured data (images). We can provide the dataset in OMOP and other common data models and can build synthetic data to meet bespoke requirements.
Available supplementary support: Analytics, model build, validation & refinement; A.I. support. Data partner support for ETL (extract, transform & load) processes. Bespoke and “off the shelf” Trusted Research Environment (TRE) build and run. Consultancy with clinical, patient & end-user and purchaser access/ support. Support for regulatory requirements. Cohort discovery. Data-driven trials and “fast screen” services to assess population size.
Keywords
Observations
Observed Node | Disambiguating Description | Measured Value | Measured Property | Observation Date |
---|---|---|---|---|
Persons | 119815 unique patients admitted to hospital | 119815 | Count | 03 Oct 2024 |
Provenance
Structural Metadata
Details
30/10/2024
31/10/2024
Coverage
01/01/2020
07/02/2024
Accessibility
Data Access Request
Trusted Research Environments (TRE) are built using Microsoft Azure services and hosted in the UK to provide research teams a safe, secure and agile environment which allows users to quickly analyse, interpret and form an enriched view of primary care information through a range of integrated datasets.
Health data collated from multiple sources is ingested into a secure data lake which will then allow subsets of data to be made available to research teams on approval of a data request. Once approved a customer specific TRE is made available with a standard set of leading analytical tools from Microsoft including Azure Databricks, Azure Machine Learning, Azure SQL and Azure Synapse (for large-scale data warehouses). Specific tools can be provided at an additional cost over the standard platform data access charge and the PIONEER team will work with you to determine your exact needs.
Access to the TRE is managed using the latest virtual desktop technology to provide a safe and secure end-user experience. By utilising leading edge design PIONEER are able to create TREs rapidly to enable us to service any customer requirement.