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Akrivia Health Database: Secondary Mental Healthcare
Population Size
5,171,515
People
Years
1990
Associated BioSamples
None/not available
Geographic coverage
United Kingdom
England
Lead time
Other
Summary
Anonymised dataset derived from electronic health records of millions of patients in secondary mental health and dementia care services.
Documentation
The Akrivia Health database contains anonymised data derived from the electronic health records of secondary mental health and dementia care patients across England and Wales. Structured data, such as patient demographics and service pathways, are harmonised across different Healthcare Organisation providers, with research-relevant information also being extracted from free-text progress notes using natural language processing. Data access is provided via Akrivia’s secure data environment.
Dataset type
Health and disease
Dataset sub-type
Mental health
Dataset population size
5171515
Keywords
Secondary care, Mental health, CRIS, UK-CRIS, Akrivia, Psychiatry, Neurodegenerative disease, Schizophrenia, Dementia, MDD, Major Depressive Disorder, Bipolar, Alzheimer's, Psychosis, Eating disorders, CNS, Central Nervous System, Real World Data, Real World Evidence, RWD, RWE, Acute mental illness, Precision medicine, Precision neuroscience
Observations
Observed Node | Disambiguating Description | Measured Value | Measured Property | Observation Date |
|---|---|---|---|---|
Persons | Patients with a referral to secondary mental healthcare services in Akrivia Health's network. | 5171515 | Count | 25 Nov 2024 |
Provenance
Purpose of dataset collection
Care
Source of data extraction
EPR
Collection source setting
Secondary care - Outpatients, Secondary care - In-patients
Patient pathway description
Dataset is from a single specialty and tier of care, secondary mental health care, but with established data linkage with a separate primary care dataset.
Image contrast
Not stated
Biological sample availability
None/not available
Details
Publishing frequency
Irregular
Version
1.0.0
Modified
25/11/2024
Citation Requirements
This Study is based in part/wholly (delete as appropriate) on data from Akrivia Health (akriviahealth.com) obtained under a limited licence from Cristal Health Ltd (t/a Akrivia Health), and its execution is approved by Akrivia. However, the interpretation and conclusions contained in this report are those of the author/s alone.
Coverage
Start date
01/01/1990
Time lag
Variable
Geographic coverage
United Kingdom, England, Wales
Maximum age range
150
Follow-up
Other
Accessibility
Language
en
Alignment with standardised data models
LOCAL
Controlled vocabulary
SNOMED CT, DM+D, ICD10, RXNORM, RXNORM EXTENSION
Format
text/csv
Data Access Request
Dataset pipeline status
Available
Access rights
In Progress
Time to dataset access
Other
Access request cost
£0
Access method category
TRE/SDE
Access service description
The Akrivia database can be accessed via a paid secure data access service, allowing researchers to safely interrogate an anonymised (but still record-level) version of the network-wide dataset within Akrivia’s Secure Data Environment (SDE). This is a paid service, in order to ensure its sustainability, and continued development of the dataset. Non-commercial users (academia, government, charities) receive highly discounted rates, with a further low-cost option for Student Researchers. Cost is based on duration of access and number of users but typically commercial access starts from £75,000 for 6 months of access, non-profit access starts from £15,000 for 6 months of access, and student access starts from £5,000 for 3 months of access. Please contact support@akriviahealth.com for full details of what the access includes. Data access requires contracting between Akrivia Health and the legal entity concerned. Where the overarching contract has been established (e.g. between Akrivia Health and University), the contracting for an individual project requires a lightweight application: this means the access request process for a first project can be lengthy (typically more than 6 months) but subsequent applications are typically processed in 1-4 weeks. We also provide consultancy services where we work collaboratively to conduct data analyses on our clients’ behalf. To find out more about our consultancy services, please contact support@akriviahealth.com.
Jurisdiction
UK
Data use limitation
Research use only
Data use requirements
Project-specific restrictions,Publication required,Time limit on use,Disclosure control,User-specific restriction
Data Controller
Akrivia Health
Data Processor
Not Applicable
Demographics
Dataset Types: Health and disease
Dataset Sub-types: Mental health
Collection Sources: Secondary care - Outpatients, Secondary care - In-patients
Publications about this dataset
Akrivia Health Database-deep patient characterisation using a secondary mental healthcare dataset in...Todorovic A, Craig P, Pillinger S, Kontari P, Gibb...
BMJ open
Published - 2024