Dataset - Health Data Research Gateway

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Akrivia Health Database: Secondary Mental Healthcare

Population Size

5,171,515

People

Population Size statistic card

Years

1990

Years statistic card

Associated BioSamples

None/not available

Associated BioSamples statistic card

Geographic coverage

United Kingdom

England

Geographic coverage statistic card

Lead time

Other

Lead time statistic card

Dataset

Publications using this dataset (external search)

Data Custodian

Summary

Anonymised dataset derived from electronic health records of millions of patients in secondary mental health and dementia care services.

Documentation

The Akrivia Health database contains anonymised data derived from the electronic health records of secondary mental health and dementia care patients across England and Wales. Structured data, such as patient demographics and service pathways, are harmonised across different Healthcare Organisation providers, with research-relevant information also being extracted from free-text progress notes using natural language processing. Data access is provided via Akrivia’s secure data environment.

Dataset type

Health and disease

Dataset sub-type

Mental health

Dataset population size

5171515

Keywords

Observations

Observed Node	Disambiguating Description	Measured Value	Measured Property	Observation Date
Persons	Patients with a referral to secondary mental healthcare services in Akrivia Health's network.	5171515	Count	25 Nov 2024

Provenance

Purpose of dataset collection

Care

Source of data extraction

EPR

Collection source setting

Secondary care - Outpatients, Secondary care - In-patients

Patient pathway description

Dataset is from a single specialty and tier of care, secondary mental health care, but with established data linkage with a separate primary care dataset.

Image contrast

Not stated

Biological sample availability

None/not available

Details

Publishing frequency

Irregular

Version

1.0.0

Modified

25/11/2024

Citation Requirements

This Study is based in part/wholly (delete as appropriate) on data from Akrivia Health (akriviahealth.com) obtained under a limited licence from Cristal Health Ltd (t/a Akrivia Health), and its execution is approved by Akrivia. However, the interpretation and conclusions contained in this report are those of the author/s alone.

Coverage

Start date

01/01/1990

Time lag

Variable

Geographic coverage

United Kingdom, England, Wales

Maximum age range

150

Follow-up

Other

Accessibility

Language

Alignment with standardised data models

LOCAL

Controlled vocabulary

SNOMED CT, DM+D, ICD10, RXNORM, RXNORM EXTENSION

Format

text/csv

Data Access Request

Dataset pipeline status

Available

Access rights

In Progress

Time to dataset access

Other

Access request cost

£0

Access method category

TRE/SDE

Access service description

The Akrivia database can be accessed via a paid secure data access service, allowing researchers to safely interrogate an anonymised (but still record-level) version of the network-wide dataset within Akrivia’s Secure Data Environment (SDE). This is a paid service, in order to ensure its sustainability, and continued development of the dataset. Non-commercial users (academia, government, charities) receive highly discounted rates, with a further low-cost option for Student Researchers. Cost is based on duration of access and number of users but typically commercial access starts from £75,000 for 6 months of access, non-profit access starts from £15,000 for 6 months of access, and student access starts from £5,000 for 3 months of access. Please contact support@akriviahealth.com for full details of what the access includes. Data access requires contracting between Akrivia Health and the legal entity concerned. Where the overarching contract has been established (e.g. between Akrivia Health and University), the contracting for an individual project requires a lightweight application: this means the access request process for a first project can be lengthy (typically more than 6 months) but subsequent applications are typically processed in 1-4 weeks. We also provide consultancy services where we work collaboratively to conduct data analyses on our clients’ behalf. To find out more about our consultancy services, please contact support@akriviahealth.com.

Jurisdiction

Data use limitation

Research use only

Data use requirements

Project-specific restrictions,Publication required,Time limit on use,Disclosure control,User-specific restriction

Data Controller

Akrivia Health

Data Processor

Not Applicable

Demographics

Dataset Types: Health and disease

Dataset Sub-types: Mental health

Collection Sources: Secondary care - Outpatients, Secondary care - In-patients

Publications about this dataset

Akrivia Health Database-deep patient characterisation using a secondary mental healthcare dataset in...Todorovic A, Craig P, Pillinger S, Kontari P, Gibb...

BMJ open

Published - 2024