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Our Future Health Clinical Measurements Data

Population Size

1,025,498

People

Years

2021 - 2024

Associated BioSamples

None/not available

Geographic coverage

United Kingdom

Lead time

Not applicable

Summary

Our Future Health is a prospective, observational cohort study of the general adult population of the United Kingdom. The dataset includes clinical measurements from 1, 025, 498 participants.

Documentation

Our Future Health is a prospective, observational cohort study of the general adult population of the United Kingdom (UK). The programme aims to support a wide range of observational health research. We gather personal, health and lifestyle information from each participant through a self-completed baseline health questionnaire and at an in-person clinic visit. We will further link this data to other health-related data sets. Participants have also given consent for us to recontact them, for example to invite them to take part in further or repeat data collections, or other embedded studies such as clinical trials.

The Our Future Health programme is currently open to all adults (18 years and older) living in the UK. In July 2022, we started recruiting participants in England and will continue to expand across the rest of the UK. The data we’ve gathered so far (December 2024) includes clinical measurements from 1, 025, 498 participants.

The current data available contains responses from our baseline health questionnaire only and an indicator if a blood sample was provided and stored. The current data is split into 2 categories: • participant data - which contains baseline demographic information collected across all consented participants • questionnaire data - which contains self-reported health information, details about participants' household, socioeconomic status, work and education history, and family history

A separate, linked dataset is available with includes genotype array data on 700, 138 variants from a subset of 66, 520 participants.

Additional linked datasets are available:

  • ‘Baseline Health Questionnaire Data’ which contains baseline demographic information and responses to our health questionnaire from 1, 414, 260 participants.
    • ‘Linked NHS England Health Records Data which contains linked clinical data from NHS England for 1, 151, 453 participants.
  • ‘Genotype Array Data’ which includes genotype array data on 707, 522 variants from a subset of 651, 050 participants

The data is stored in the Our Future Health Trusted Research Environment. We de-identify all participant data we gather before it’s available for use. All researchers will need to become registered researchers at Our Future Health and have an approved research study before they're given access to the data.

We aim to collect a variety of data types from up to 5 million adult participants from across the UK. We hope to make more data types available on a quarterly basis.

Dataset type
Measurements/Tests
Dataset sub-type
Other diagnostics
Dataset population size
1,025,498

Keywords

research, united kingdom, cohort study, clinical measurements

Observations

Observed Node
Disambiguating Description
Measured Value
Measured Property
Observation Date

Persons

Persons who consented to joining Our Future Health and clinical measurements taken.

1025498

Count

14 Oct 2024

Provenance

Purpose of dataset collection
Study
Source of data extraction
Other
Collection source setting
Clinic
Patient pathway description
Not applicable
Image contrast
Not stated
Biological sample availability
None/not available

Structural Metadata

Details

Publishing frequency
Quarterly
Version
1.0.0
Modified

26/11/2024

Distribution release date

11/12/2024

Coverage

Start date

01/05/2021

End date

15/10/2024

Time lag
Other
Geographic coverage
United Kingdom
Minimum age range
18
Maximum age range
150
Follow-up
0 - 6 Months

Accessibility

Language
en
Alignment with standardised data models
LOCAL
Controlled vocabulary
LOCAL
Format
csv, tsv

Data Access Request

Dataset pipeline status
Not available
Time to dataset access
Not applicable
Access method category
TRE/SDE
Access service description

The Our Future Health Trusted Research Environment (TRE) is a highly secure computing environment, where researchers can access the Our Future Health data they have applied for. The TRE is subject to rules, monitoring, and strict controls to protect the data and participants' privacy.

The Our Future Health TRE has a range of tools available for analysing the data. More information is available here:

https://research.ourfuturehealth.org.uk/analysing-the-data/

If you think our TRE will not be able to meet your research needs, for example, if you’ve developed complex software or analytical tools that would be hard to recreate, you can apply to access the data using a different TRE.

Jurisdiction
GB-ENG
Data use limitation
Research use only
Data use requirements
Project-specific restrictions, Geographical restrictions, Return to database or resource, Time limit on use, User-specific restriction
Data Controller
Our Future Health
Data Processor
None

Dataset Types: Measurements/Tests

Dataset Sub-types: Other diagnostics


Collection Sources: No collection sources listed