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Health Research from Home
Description
{"type":"doc","content":[{"type":"paragraph","content":[{"type":"text","text":"The aims of Health Research from Home are to collate and spread best practice in smartphone and wearable population research to the wider community, and to pioneer the successful linkage of smartphone and wearable data to existing research databanks. This will lead to a more skilled and expanded research community with foundational patient and public partnership, robust information governance, better connections to technology partners, and improved analysis methods. This is an area of major opportunity, and where the UK has the potential to lead globally given its existing skills and health data research assets. Ultimately, the Partnership is devised to support future well-designed, hypothesis-led research that matters to patients and the public, enabled via mass public participation using smartphones and wearables from the comfort of their home."}]},{"type":"paragraph","content":[{"type":"text","text":"The main activities are a series of community and capacity building events, supported by an online Community Hub, plus two driver research projects and evaluation of other UK studies linking smartphone and wearable data to existing national research databanks. Outputs will include a series of webinars; annual meetings; information governance, technology and PPIE clinics; grant-writing retreats and time-series challenge events; all supported by a sustainable online resource of people, know-how and methods, data, code and technology. Outputs of the driver projects, with wider evaluation of other linkage studies, will be a report and recommendations based on lessons learned from varied approaches to conduct and linkage (as well as answers to the clinical questions about physical activity patterns after knee replacement and long-term health outcomes following Long COVID). The Partnership involves academics and public contributors from Manchester, London (Kings and Imperial), Edinburgh, Oxford and Cambridge, in collaboration with Health Data Research UK, Google, Verily Life Sciences and GSK."}]}]}