ERA Registry

ILD35

End-stage kidney disease (ESKD) in children is a rare, but serious condition and renal replacement therapy (RRT) is needed in order to sustain life. Each year, RRT is initiated in 5 to 6 per million children in Europe. A study in European adult patients showed a decreasing number of new patients and an increasing number of existing patients between 2001 and 2011, but data for children in Europe is lacking. Major improvements in paediatric renal care over the past 30-40 years have resulted in a changing paediatric RRT population, including very young patients and patients with more comorbidities. Registry data will be used to examine the numbers of new patients, numbers of existing patients, and survival rates for children on renal replacement therapy in Europe, and how these numbers have changed over time between 2007 and 2016. This information is important to assist counselling of the prognosis of affected children and their families.

06/12/2019