University of Leicester

ILD24

Chronic Kidney Disease (CKD) is a condition where the kidneys gradually become unable to carry out their normal function until they reach a stage when the patient needs dialysis or a kidney transplant. People with CKD suffer from a range of symptoms which can reduce their quality of life. As for all long term health conditions, it is important for people with CKD to try to be partners in their own healthcare as much as possible, so they can manage their day to day lives and their symptoms to achieve the best possible quality of life. The desire, confidence and ability to take control of one’s own healthcare is termed “patient activation” and can be assessed by a questionnaire called the Patient Activation Measure (PAM). Transforming Participation in Kidney Disease was a project run by the Think Kidneys programme. The aim was to support renal units to help and encourage kidney patients to get more involved in their own care. As part of the project, three surveys were sent to kidney patients. This study will use statistical analysis of the survey response data to see if there is any relationship between patient activation, symptoms and quality of life in people with CKD. This work will be the first to describe kidney patient activation levels in the UK. It will also be the largest study anywhere in the world to look at the relationships between activation and symptom burden and quality of life. It will begin to identify patient characteristics associated with poor and good activation levels, thereby indicating which patients may need extra help to manage their health, and what kind of support is most appropriate for each individual patient.

10/12/2018