Imperial College London

Academic Institute

Neena Modi

The Medical Research Council

nnrd16

The UK National Neonatal Research Database, is a partnership between, the Neonatal Data Analysis Unit (the data controllers of the NNRD), the Institute for Translational Medicine and Therapeutics Data Science Group (ITMAT - DSG) Imperial College, NHS Digital (NHSD), The National Perinatal Epidemiology Unit (NPEU) University of Oxford, Bliss (the baby charity), Health Data Research UK (HDR UK) and the Strategic Intelligence Alliance (SIA) in Healthcare Ltd. The aim of the partnership is to extend the already wide research utility of a mature, award-winning, national resource of real-world data, the UK National Neonatal Research Database (NNRD). The partners will automate processes to check accuracy and add new data into the NNRD that we currently perform manually. At present anyone who wants to use the NNRD must request our assistance, which inevitably incurs a delay. The partnership will identify common types of information that researchers, parents and clinicians would find useful to obtain from the NNRD. This might be to determine the number of patients with particular conditions that are admitted to neonatal units. We will also obtain views on the way in which they would like to see the results (e.g. tables or graphs). This will help us develop web-based tools to enable parents and researchers to answer common questions themselves. We will make these tools available on our website. We will also develop ways to process NNRD data so that we can apply new techniques that can help identify patterns such as where particular types of disease occur and provide clues to their causes. Additionally, we will train young scientists in handling complex health data.

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