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Health resource utilisation and cost burden of individuals with Amyotrophic Lateral Sclerosis (ALS) in England

Safe People

Organisation name

Biogen

Organisation sector

Commercial

Applicant name(s)

Li Li - Chief Investigator - BiogenKatie Stenson - Corresponding Applicant - BiogenKim Heithoff - Collaborator - BiogenSusan Eaton - Collaborator - BiogenVarant Kupelian - Collaborator - Biogen

Safe Projects

Project ID

CPRD25

Lay summary

Amyotrophic lateral sclerosis (ALS), also known as motor neurone disease (MND) is a condition affecting the

Technical summary

To describe and estimate the HCRU (frequency) and costs of outpatient visits, hospitalisations, medications, medical procedures, and assistive devices among adults newly diagnosed with ALS in England. The diseased group consists of those newly diagnosed with ALS based on Read/SNOMED codes and having no encounters with ALS diagnostic codes for 6 months prior to the index date. We will then match cases to controls without ALS diagnosis by age (at

Latest approval date

12/05/2021

Safe Data

Dataset(s) name

HES Admitted Patient Care

HES Outpatient

ONS Death Registration Data

Patient Level Index of Multiple Deprivation

Practice Level Index of Multiple Deprivation

Safe Setting

Access type

Release