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Does ethnicity affect the recognition of palliative care needs? An observational retrospective cohort study

Safe People

Organisation name

University of Leeds

Organisation sector

Academic Institute

Applicant name(s)

Gemma Clarke - Chief Investigator - University of LeedsGemma Clarke - Corresponding Applicant - University of LeedsFarag Shuweihdi - Collaborator - Not from an OrganisationMichael Bennett - Collaborator - University of LeedsSamuel Relton - Collaborator - University of LeedsSophie Trotter - Collaborator - NHS CALDERDALE CCGWei Gao - Collaborator - King's College London

Safe Projects

Project ID

CPRD17

Lay summary

Palliative care helps provide patients with pain and symptom relief, particularly as people come towards the end of their lives. Access to palliative care is associated with good quality end of life care. However, some studies have shown that people from ethnic minority groups and non-cancer disease groups may not get the same access to these services.

Technical summary

Timely access to palliative care is associated with improvements in symptom management and quality of life, and has been shown to reduce the unnecessary use of acute care. General Practitioners (GPs) play a key role in providing palliative care for patients in the community; such as care planning, coordination, and referrals to specialist services. However, some evidence indicates inequalities in provision; for those with nonmalignant disease, and for people from ethnic minority groups.

Latest approval date

10/06/2021

Safe Data

Dataset(s) name

HES Accident and Emergency

HES Admitted Patient Care

HES Outpatient

ONS Death Registration Data

Patient Level Index of Multiple Deprivation

Safe Setting

Access type

Release