Bookmarks
ID 374: PREPARE: Evaluation of the Electronic Palliative Care Coordination Systems to support advance care planning for people living with life-limiting conditions
Safe People
Organisation name
Royal Marsden NHS Foundation Trust
Applicant name(s)
Funders/ Sponsors
Safe Projects
Project ID
ID 374
Lay summary
The data from this research project will be used to help us understand if EPaCCS offer benefits to people at the end of life, their families and the NHS.
Public benefit statement
The data from this research project will be used to help us understand if EPaCCS offer benefits to people at the end of life, their families and the NHS. We will also work closely with patients, their families, health professionals, policymakers, the Office for Health Improvement and Disparities and NHS England to make recommendations on the future use of EPaCCS. The results will be published in suitable journals, presented at conferences and through public engagement events. We will also work with key stakeholders (EPaCCS providers, Integrated Care Boards and health professionals) and in close collaboration with local populations to ensure those who promote end-of-life care decisionmaking facilitated by EPaCCS are more accessible and acceptable to individuals across the social strata. This will also include bespoke training for health professionals in culturally competent care to enable end-of-life care discussions and decision-making.
Other approval committees
Latest approval date
16/11/2023
Safe Data
Dataset(s) name
Safe Setting
Access type
TRE