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ID-491: Evaluating the Care Information Exchange to Improve Patient Experience and Care Pathways in North West London

Safe People

Organisation name

Patients Know Best

Applicant name(s)

Mohammad Al-Ubaydli

Funders/ Sponsors

Safe Projects

Project ID

ID-491

Lay summary

This evaluation measures NWL residents’ use of the Care Information Exchange (CIE) and its impact on healthcare delivery, ensuring the service is effective, equitable, and informs future improvements and commissioning.

Public benefit statement

The findings from this evaluation will be used to improve the CIE service, leading to the following direct benefits for patients in North West London: More Effective and Personalised Support: By understanding which information and features are most helpful to patients, the NHS can develop targeted guidance and support. This will help more patients, particularly those new to the CIE, to feel more confident in managing their own health, preparing for appointments, and playing a more active role in their care decisions. A Clearer, More Complete Picture of Their Health: This project will help optimise how information from GPs and hospitals flows into the CIE. For patients, this means logging in to see a single, reliable, and more complete view of their health story. This empowers them to have better-informed conversations with all their clinicians, reduces the stress of repeating their medical history, and helps them spot any potential errors in their information. More Joined-Up and Coordinated Care: By analysing how patients use the CIE to interact with different services, and by evaluating waiting list management and patient flow across national pathways, the NHS can identify ways to improve care pathways. This will directly benefit patients by creating a more seamless healthcare experience, potentially reducing the need for repeated tests and ensuring that every professional they see has a more holistic understanding of their health journey. Enhanced Understanding of Health Determinants: By linking CIE usage with broader population health factors like air pollution, this work will help healthcare providers gain a deeper understanding of the factors influencing patient health, leading to more informed and proactive care strategies. Ultimately, this work will help the CIE evolve from a simple digital record into a more impactful service that actively supports patients to better understand their conditions and manage their care in partnership with the NHS.

Other approval committees

Project start date

01/10/2025

Project end date

01/04/2026

Latest approval date

16/10/2025

Safe Data

Dataset(s) name

Data sensitivity level

De-Personalised

Release/Access date

20/10/2025

Safe Setting

Access type

TRE

Safe Outputs

Link to research outputs