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Understanding limitations and bias within the ZOE symptom tracker dataset

Safe People

Organisation name

MRC Integrative Epidemiology Unit

Organisation sector

Academic Institute

Safe Projects

Project ID

1137

Lay summary

Many governmental and healthcare organisations are in the development or deployment stages of COVID-19 track and trace projects. Many of these efforts will be carried out via a smartphone application (hereafter “app”) that individuals download and participate through. It is currently unclear which groups of people such app sampling inadvertently over- or under-represents as a result of differential uptake. If data are collected from track and trace efforts with the aim of NAME Matt Tudball EMAIL matt.tudball@bristol.ac.uk JOBTITLE PhD Student ORGANISATION University of Bristol Independent Peer Review Not required IF YOU HAVE TICKED 'NOT REQUIRED' PLEASE SPECIFY THE REASONS: Research Ethics Not required THE PROJECT USES WILL USE ONLY ANONYMISED DATA, AND THEREFORE RESEARCH ETHICS REVIEW IS NOT REQUIRED Yes 2 of 6 establishing common patterns of transmission, differential uptake and patterning of participation may hamper efforts to understand COVID-19. Findings arising from app sampling may not be generalisable to the broader population, and associations between risk factors that influence selection may be biased or even spurious. The COVID Symptom Study provides a valuable case study for modelling selection processes as it was promoted and developed during a similar period and with similar public health priorities. The COVID Symptom Study is a mobile app in which registered users can report their demographic characteristics, comorbidities, symptoms and whether they have been tested for COVID-19. These data have previously been used to generalise results to the general population. However, this is likely to be erroneous as people who choose to download the app and use it regularly are likely to differ systematically from the rest of the population. Additionally, app users who report receiving a COVID-19 test are likely to differ from the rest of the app users, and these differences are also likely to change over time, as availability and criteria for being tested change.

Latest approval date

22/06/2020

Safe Data

Dataset(s) name
Data sensitivity level

Anonymous

Legal basis for provision of data under Article 6

(e) processing is necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the controller;

Lawful conditions for provision of data under Article 9

(j) processing is necessary for archiving purposes in the public interest, scientific or historical research purposes or statistical purposes in accordance with Article 89(1) based on Union or Member State law which shall be proportionate to the aim pursued, respect the essence of the right to data protection and provide for suitable and specific measures to safeguard the fundamental rights and the interests of the data subject.

Common Law Duty of Confidentiality

Not applicable

National data opt-out applied?

Not applicable

Safe Setting

Access type

TRE